A full blood test workup with the hematologist and an exam to determine the size of the spleen are in order. Also, make sure you are checked for iron levels, including an absorption score. I was diagnosed with ET, an MPN, due to high platelets, low iron, and Jak2 18 months ago. I had no symptoms. I take 500 mg of HU, 4x a week, daily iron, and daily baby aspirin. Currently, my overall labs look better, and no complications. My platelets have gone from 800K to 515K, and my hematologist is happy with that number based on looking at all my labs. There are many great support groups that are free that I belong to including the MPN Foundation, Voices of MPN, and MPN Advocacy. MPN Advocacy offers free, monthly online seminars with MPN specialists. They are also available to go back and watch on YouTube. My hematologist is not an MPN specialist, but he is competent, caring, and listens. I am an information junkie and try to know as much as I can about what I am facing. Fortunately, my doctor is fine with me doing my own gathering of information. Take care and wishing you the best!
Karla
https://mpnresearchfoundation.org/
https://www.voicesofmpn.com/register
https://mpnadvocacy.com/