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Big 3 and Ongoing Bloodwork for MAC

MAC & Bronchiectasis | Last Active: Mar 15, 2017 | Replies (39)

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@kwilbur

No white counts. Just fatigue and the rest that goes with MAC although I haven't been formally diagnosed. Had a CScan yesterday. Hope to find out more

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Replies to "No white counts. Just fatigue and the rest that goes with MAC although I haven't been..."

Lynn, again I encourage you to read the past posts .. it has SO much helpful and good info.

ABSOLUTELY .. YES .. do start right away with probiotics .. get that tummy as healthy as possible! Dr. Aksamit recommended starting right away. Personally I researched and found the 3 different probiotics with the MOST billions and most different strains for each. Then this is just me .. but I would rotate the different 3 brands .. feeling that way I would get the most different strains of probiotics possible.

Now this certainly is not scientific .. just me trying to do my best. If you don't want to go to that trouble .. since I am now off the antibiotics I recently found a probiotic that I am now taking daily just for general health that I felt is pretty good: HEALTH ORIGINS NATURAL PROBIOTIC 30 BILLION CFU'S WITH 8 STRAINS
https://smile.amazon.com/Healthy-Origins-Probiotic-Billion-Stable/dp/B00309S4C4/ref=sr_1_1_a_it?ie=UTF8&qid=1475640098&sr=8-1&keywords=HEALTH+ORIGINS+NATURAL+PROBIOTIC+30+BILLION+CFU%27S+WITH+8+STRAINS best price I found was here at Amazon .. $36 for 150 caps (but remember .. NO trouble should be TOO much .. remember .. you are only given one body in this lifetime! If you don't take care of it .. It can't take care of you! Be kind to it!)

In terms of doctors .. I always recommend asking them "How many MAC patients have you treated in the past twelve months?". This is just me .. but I want someone who is up on the treatment. THEN if I find that ONE doctor .. that I TRUST and feel comfortable with .. I feel you do NOT need conflicting advice from two different doctors .. UNLESS you feel you need a SECOND opinion!

Lynn, I am SO happy you have the MAC Center of Excellence at the Medical University of South Carolina .. so many people out there are stuck with situation where doctors don't have a clue hardly what MAC is!! You are indeed blessed .. I am so happy for you! Sounds like you are in good hands .. BUT even then .. do your due diligence .. google the various doctors there at the U .. evaluate 1. Where did they go to school (in my personal opinion .. the tougher the school they got into .. the brighter they are .. AND the more I want to be their patient!) 2. I like a balance in age .. old enough to have experience .. knocked their heads up against the wall enough times so I am not their guinea pig .. AND yet young enough that they have the newer knowledge. Now this is just my thinking as I research doctors .. but it has worked for me and finding doctors for my husband. Hope it helps give you some thoughts! Remember .. YOU are the EMPLOYER .. the doctors are YOUR employee!! Unless you have insurance issues .. don't forget that you are in the driver's seat!

Hope this helps just a little. Just remember to be logical .. this disease is not rocket science .. just take figuring out .. AND you can do it! We all will be here helping you along the way! Hugs to you! Katherine

thank you so much for your sage advice. Happy to hear about the probiotics. Best, Lynn

Lynn, please feel free to any more questions you may have as you read through the pages .. keep coming back .. we are here for you on your journey! Hugs! Katherine

katemn.....printed this question list out...putting it my MAC folder to bring with to NJewish when l get my appt....in order to have Dr Heuitt.....l will wait til January....otherwise was offered appt in December with other Doctors....figured l am more comfortable with her hence worth the wait....going about local appts...next week with local (milwaukee) Infectious disease Dr....to see her knowledge base and willingness to work with NJ when the time comes...terrid

Hi Terri! WOW! it sound like this girl has a plan .. is working the plan .. AND going about her day after doing a GREAT job of her "due diligence"! You can be SO proud of yourself! Good for you!! I am sending you a BIG hug! Katherine