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Fluctuating PD Symptoms

Parkinson's Disease | Last Active: Oct 26 9:47pm | Replies (5)

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@lisalucier

Hi, @lagiaconda. It sounds like you are feeling bewildered yet learning about the reality of Parkinson's since your diagnosis.

I'd love for you to meet @hopeful33250 @sillyblone @jeffwillapa @sherryallen, who may have input on your questions about how far into the disease they or their loved one with Parkinson's had to take drugs to manage symptoms. They may also be able to speak to whether it's the norm for Parkinson's symptoms to come and go.

You mentioned you take no medications for Parkinson's at this time. Are you finding any non-medication tools that help you when you experience symptoms, @lagiaconda?

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Replies to "Hi, @lagiaconda. It sounds like you are feeling bewildered yet learning about the reality of Parkinson's..."

Many thanks for your thoughtful response, Lisa!

Truth is I don't know if my newish behaviors (six months) are helping symptoms or not since I don't have much to compare them with; thus, my question about when others began taking meds. However, I usually feel quite well with the exception of my ongoing anxiety and fear about what awaits me.

I have an excellent neurologist but he's not open to ANY treatment that's not FDA approved. He didn't IN THE LEAST support my investigation into stem cell therapy, nor is he open to how my naturopathic doctor strongly recommends a lifestyle approach, including dietary changes, increased exercise, and more social interactions. The protocol requires a rather disciplined commitment to adhere by their guidelines, but to me it is little sacrifice if I see positive results. I think only time will tell, since I don't know how to gauge my progression compared to others with the disease.

Thank you!