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Diagnosing pain from prostate cancer

Prostate Cancer | Last Active: Oct 23 5:39pm | Replies (5)

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@northoftheborder

What @stevecando54 said.

My cancer metastasised to my middle spine and damaged my spinal cord severely, so I have phantom nerve pain all over from the ribs down, and conversely don't always feel pain that I should. It took me time to trust that pains that come and go or move around aren't new metastases (a sustained PSA < 0.01 helps my confidence a lot as well).

I write down anything I'm really worried about when I notice it, then erase it if it's gone away again in a week or two. Very little of it makes it to my quarterly oncology appointments, and of the ones that have, medical imaging has confirmed they come from other causes: recurring bladder and rectal pain from radiation damage, and recurring pain between my spine and right shoulder blade from a knot of fat, muscle, and scar tissue left over from my emergency spinal surgery.

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Replies to "What @stevecando54 said. My cancer metastasised to my middle spine and damaged my spinal cord severely,..."

I'm so sorry that you have been through so much. I'm grateful to you and others for sharing your stories.

I'll start keeping a list like yours. I had a sister who kept great notes when she had cancer. (She was the organized one in the family) Not only did it help her remember things and spot patterns but her notes have helped family members by giving us tips about caring for a loved one who is ill.

There are so many causes of pain that one must be a detective to sort them all out.

Blessings, jehjeh