I dont know what to do anymore...

I know exactly how you feel, I do hope that you can find out what's wrong.
Have you tried pain medication? I know it's just a band aid but I don't know how I'd cope without it.
For several years now I have had all over body pain, all the time, plus truly debilitating fatigue. My whole life has changed.
My doctor has me on 750/350 Hydrocodone Acetaminophen four times a day.
This does help. (at 78 I am not concerned with the addiction aspect) I tolerate the medication pretty well but I would really like to know what is wrong with me. The only rheumatologist in my area diagnosed Willis–Ekbom Disease. (restless leg syndrome) I do not have restless legs.
My lab work and scans are both normal. Could this be fibromyalgia, and if so what sort of doctor should I see?

I'm glad the Hydrocodone is helping you. I want to add something about pain meds in general. My mom died of CHF at the relatively young age of 71. Her life really went down hill when she got a power chair and stopped walking, and then again when she went on Oxycodone (which is a bit stronger than Hydrocodone). A year later she died and I'm certain that the meds hastened her death because she just stopped doing things. HOWEVER, she died pretty happy. She was not in pain at least. If she had not been on Oxy I think she could have lived another ten years....but would that have been a good thing? Honestly, I think it all worked out the way it was supposed to. So, approach pain meds very carefully with an understanding of the pros and cons.

@lopus a rheumatologist diagnosed my fibromyalgia.

Thanks Rashida.

I wholeheartedly ditto what Arne just suggested. I am 74. I have multiple autoimmune diseases and am very debilitated. I have just recently started to focus on something joyful, something for fun, out of the house, every day. It truly works to have something to look forward to, a change of scenery and see the beauty in our surroundings. My other suggestion is to see an immunologist or at least get your rheumatologist to order immunoglobulins in your serum. People with auto immune diseases can also have immune deficiencies. That could be why you are getting MRSA infections. An infectious disease doctor would certainly do that as well and be the expert on treating and preventing MRSA. It sounds paradoxical, but the autoimmune disease means you’re producing too many antibodies against your own cells and the immune deficiency means you’re not producing enough antibodies to germs. The immune deficiency can be treated to help prevent the infections with IV antibodies (IVIG). As suggested, pain medication helps you get through the day more comfortably and improves your productivity, mood. There are specific drug therapies for psoriatic arthritis and it seems you should be on one of those if you aren’t already. In-depth bloodwork is needed to uncover some of these hidden maladies. The usual routine bloodwork is insufficient to diagnose many problems and being told you’re just fine when you know you aren’t is so frustrating and dismissive. There are many of us here who can relate to your situation and would like to be helpful. understanding and encouragement go a long way in helping someone have the stamina to trudge forward through a journey of adversity. we are here for you!

I wholeheartedly ditto what Arne just suggested. I am 74. I have multiple autoimmune diseases and am very debilitated. I have just recently started to focus on something joyful, something for fun, out of the house, every day. It truly works to have something to look forward to, a change of scenery and see the beauty in our surroundings. My other suggestion is to see an immunologist or at least get your rheumatologist to order immunoglobulins in your serum. People with auto immune diseases can also have immune deficiencies. That could be why you are getting MRSA infections. An infectious disease doctor would certainly do that as well and be the expert on treating and preventing MRSA. It sounds paradoxical, but the autoimmune disease means you’re producing too many antibodies against your own cells and the immune deficiency means you’re not producing enough antibodies to germs. The immune deficiency can be treated to help prevent the infections with IV antibodies (IVIG). As suggested, pain medication helps you get through the day more comfortably and improves your productivity, mood. There are specific drug therapies for psoriatic arthritis and it seems you should be on one of those if you aren’t already. In-depth bloodwork is needed to uncover some of these hidden maladies. The usual routine bloodwork is insufficient to diagnose many problems and being told you’re just fine when you know you aren’t is so frustrating and dismissive. There are many of us here who can relate to your situation and would like to be helpful. understanding and encouragement go a long way in helping someone have the stamina to trudge forward through a journey of adversity. we are here for you!

I suggest a referral from your primary or see a doctor associated with research, like a university hospital. I’ve been to Mayo Clinic at Rochester MI or there is Sloan Kettering. Big name facilities. You might try a local endocrinologist or get a referral. I assume you’ve seen a rheumatologist which is where I would begin. Be pushy. You are your only advocate in getting a doctor that can help you. Good luck!

I suggest a referral from your primary or see a doctor associated with research, like a university hospital. I’ve been to Mayo Clinic at Rochester MI or there is Sloan Kettering. Big name facilities. You might try a local endocrinologist or get a referral. I assume you’ve seen a rheumatologist which is where I would begin. Be pushy. You are your only advocate in getting a doctor that can help you. Good luck!