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Pulmonary Fibrosis Meds

Lung Health | Last Active: Nov 5 5:52pm | Replies (32)

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83 year-old hubby has had been having nosebleeds off and on -- fairly regularly ever since taking Pirfenidone (Esbriet) for his Pulmonary Fibrosis over the last several months. Even after gradually cutting down from the original 3 pills a day to just one.What would you suggest that he should discuss with his pulmonologist when he returns hubby's call -- Ofev or anything else that might be helpful?

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Replies to "83 year-old hubby has had been having nosebleeds off and on -- fairly regularly ever since..."

Have any of you had nosebleeds from taking Ofev?

My 54 year old husband is on Ofev for IPF. We found that his nose bleeds are caused from lack of moisture in his nose. We added humidified air for his oxygen and we put bacitracin in his nose for moisture and helps catch germs. Occasionally he still has nose bleeds.

Update: Hubby saw an Ear, Nose and Throat specialist for these nosebleeds. The ENT treated it by cauterizing a blood vessel. So, it may not have been the Esbriet after all. Doctor suggested that he wait two weeks until nose is healed before re-starting the Esbriet.

Look into the Afrin nasal spray. This may be the cause of some his issues.

Are you saying that Afrin can cause nosebleeds? On the recommendation of some in this group, he was only using Afrin occasionally to help stop the nosebleeds. Not sure if it made any difference, but he hasn't had any nosebleeds since he had the blood vessel cauterized last week.