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@april4170 - Welcome to Mayo Connect!
You have had a difficult life recovering from bacterial meningitis. It’s a very serious infection since it causes damage to the central nervous system and recovery is different in all patients. Hearing loss is not an unusual complication. You should have an eye doctor examine your eyes to determine the cause of your vision problem.
Since you also have difficulty with sleep as well as constant pain it would be a good idea to see a neurologist.
You are definitely not crazy!
I understand very well what it’s like living with chronic debilitating illness- I have some experience myself as well as my children. The illness may not be visible to others but it’s definitely there.
Did you check some of the old posts? There are also links to more information.
Hang in there- get a full neurological evaluation first.
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Thank you. I have seen a neurologist a couple times but he recommended me to a psychiatrist and said it is depression causing these symptoms. I’m also an RN and during that time I was a psych nurse, so I knew it was not depression related. Yet, I still took the meds prescribed hoping those would help—it didn’t and some symptoms ultimately worsened. As for the ophthalmologist…I see him once yearly but no significant changes that he can see through my exams. I’m scheduled to see him in December, so I hope things will change.
I will look at past posts and see what else I can do. But I just joined the site and I had no idea this platform existed. I’m glad I have found a safe place that have people just like me—I’m less anxious now.