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meningone
@meningone

Posts: 2
Joined: Nov 23, 2018

After Bacterial Meningitis

Posted by @meningone, Fri, Nov 23 9:23am

I don’t know if I have TBI, or what is wrong with me. I contracted BM late April 2018 and since then have had all sorts of complications. Headaches ranging from moderate to severely debilating, horrible neck pain that never goes away & makes it almost impossile to turn my head to look from side to side, and definately not behind me. Spine and rib pain. It seems that every muscle and joint in my body hurts, keeping me in constant daily pain.Very often it feels like my muscles or something inside my body is on fire. I have such trouble with memory and concentration. I cannot tolerate extra stimuli anymore. Too much noise, too much decision making, stress, too many people talking, get me really anxious and I feel I need to get away from the situation and I kinda just shut down. Things like flashing lights, loud patterns, alot of showing of mixed changing colors and things like that make me nauseous, dizzy and anxious. Driving or riding in a car brings on the headaches, pain, and exhaustion. I am sooooo exhausted/fatigued all the time. I always feel like I need to rest, but resting doesn’t help. On the other hand, pushing myself and putting myself or being in these situations do make it worse. But I can’t avoid life, nor do I want to. I want to enjoy my family and friends. My grandaughters. My church family. I am at a loss.

REPLY

Hello @meningone. Thanks for posting. Welcome to Mayo Clinic Connect.

I'm sorry to hear you are suffering from such symptoms. Do you believe you have a TBI that stemmed from your BM? Have you been seen by your primary care physician?

@jamienolson

Hello @meningone. Thanks for posting. Welcome to Mayo Clinic Connect.

I'm sorry to hear you are suffering from such symptoms. Do you believe you have a TBI that stemmed from your BM? Have you been seen by your primary care physician?

Jump to this post

Hello @jamienolson. I don't know if it's TBI, ABI, or really what it is? But yes, all this happened after my BM. I had none of thee symptoms before. At first I thought it was because I was newly ill, and still on a round of 10 days of IV antibiotics at home. But it kept going on & on. It's 7 months later and I'm still experiencing these symptoms. I have seen my PC, at 1st she was shocked I was still experiencing after effects, and didn't understand why I was. Then she said it was inflammation and should go away. I see her monthly and we are trying different preventatives and abortatives for pain, but she doesn't know why this is happening. I didn't know if anyone else on here has went through this?

@meningone

Hello @jamienolson. I don't know if it's TBI, ABI, or really what it is? But yes, all this happened after my BM. I had none of thee symptoms before. At first I thought it was because I was newly ill, and still on a round of 10 days of IV antibiotics at home. But it kept going on & on. It's 7 months later and I'm still experiencing these symptoms. I have seen my PC, at 1st she was shocked I was still experiencing after effects, and didn't understand why I was. Then she said it was inflammation and should go away. I see her monthly and we are trying different preventatives and abortatives for pain, but she doesn't know why this is happening. I didn't know if anyone else on here has went through this?

Jump to this post

Hello, @meningone. I'd like to join @jamienolson in welcoming you to Mayo Clinic Connect. It sounds as though you've dealt with a host of challenging symptoms and are still seeking answers. It also seems like you have a primary care provider who is really looking out for you in trying to understand the situation and helping you with the pain.

Here is some Mayo Clinic information on meningitis/bacterial meningitis in which you may be interested:

– on meningitis symptoms, causes, treatments, doctors: https://www.mayoclinic.org/diseases-conditions/meningitis/symptoms-causes/syc-20350508

– on identifying meningitis, with a video: https://newsnetwork.mayoclinic.org/discussion/infectious-diseases-a-z-identifying-meningitis/

Since you mentioned the symptoms you've had post-bacterial meningitis, I'd also like to introduce you to a few members who have talked about meningitis and may have some input for you: @murraygamble @dgosney23 @lyndsey611@jjtaylor95 @junebug222. I'd also like you to meet @johnbishop.

In addition to the primary care provider who has been working with you after your bacterial meningitis, @meningone, I'm wondering if you have seen a neurologist or an infectious disease specialist? If so, what is their opinion on your situation?

Hello @meningone. I would like to add my welcome along with @lisalucier, @jamieolson and others. There is another discussion that you may want to join here:

Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

There is a link in the discussion to TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome which seems similar to some of the symptoms you are experiencing.
— — https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

John

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