My middle kid (female) had a heart rate of 140 at rest for awhile and then it went back to normal rate, mysteriously. I believe she had POTS from the tilt table test though the nurse turned around too quickly and didn't see the bp drop. Twenty years later she still has moments of near fainting in heat, because it dilates blood vessels and lowers blood pressure, I assume. She just recently went to a cardiologist for the first time in decades due to lupus.
My oldest kid (male) had fast heart rate after exercise and saw a pediatric cardiologist. I honestly forget why. They were very concerned and we called in his heart rate from the school nurses' office every day for awhile, after exercise. That too mysteriously righted itself.
I would find a really good pediatric cardiologist. Your daughter has had EKG, echo, stress test and svt and POTS are ruled out. What issue was found with the stress test?
I would ask what is causing the low blood pressure since that can make the heart rate go up, as I understand it. @gloaming knows more! I assume she is hydrated and you said she is taking salt.
I really hope you can find a doctor who listens. We found it could be hard to find doctors to take problems seriously with young females. The doctor should definitely test thyroid, cortisol, autoimmune markers, anything that could be contributing and whatever was found on the stress test must be relevant.
Thanks for all the information. Unfortunately, she is under one of the best pediatric cardiologist. Apparently, people drive 8 or 9 hours to see this doctor.
The stress test was the one with the pulmonary function and her lungs were cleared and they said they were no breathing issues. This is what we were told about the stress test:
- at level two kids her age have a max heart rate of 142. When she started level 2 she was already at 145 heart rate.
-then at the final stage of the test her heart was at 218 and her blood pressure was tanking.. she got to 82/49 and the test was stopped.
- we were told there clearly is an issue but the doctor was going to go back and review her blood work and the results from the halter moniter she wore for 10 days again
- The conclusion from that was that there was no clear signs of why this was happening and no wires to fix.
-no medication would be given at this time because of how low the blood pressure got
- we were to recondition the heart meaning getting her heart rate up to 130 for 2 1/2 hours a week and then as high as we can get it for 30 minutes. So we did this for about a month before she started band camp (which we were cleared to start by cardiologist)
- we were told to restrict her to 3 hours a day and that it was just conditioning it faster.
-nothing has improved and I can't even get an appt