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← Return to biopsy for small nerve fiber
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Thank you so much for replying with your positive but also realistic message. I would love to go to Mayo or University of MN. Mayo does not accept any out of network Medicare Advantage plans at least in 2023when I was looking at going there. If you are too young for Medicare, remember that about Advantage plans which are not good when a serious potentially long term illness comes about. I cannot change to a gap plan or other choices. Only choice is another Advantage plan or traditional Medicare which is then hat I am responsible for 20% of all Medicare allowable charges. We are reviewing option now for next year. Some places have a hold on accepting anymore neuro patients. At least my Advantage plan is a PPO and is a very large one.
Warmest regards to you and your sister.
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I am on Medicare, with an Advantage plan. I never considered things like Mayo when I chose it. Good to know. When I first got my “mystery “ illness 9 years ago, it was being approached as a rheumatological illness. Although I live near two respectable centers, Vanderbilt and UAB, I wanted desperately to see the very best. Mayo was not taking any more rheumatology patients. I ended up at Cleveland Clinic, where I was diagnosed with fibromyalgia - maybe correctly, but not my primary diagnosis, which is length-dependent small fiber polyneuropathy. I’ve learned that all it takes is one good doctor at a respected institution who is perceptive and experienced. I just got lucky really at UAB.