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@gingerw

@nbadry Nicole, I am taking Revlimid for multiple myeloma. I have been on it since August 2021. Due to a comorbidity of end-stage renal disease [not related to the myeloma] we decided to use a lower dose of 5mg. However, due to the side effects of everything, we lowered the dose to 2.5mg earlier this year. My Hb number remains fairly stable, but it really is a daily challenge dealing with multiple health concerns. Keeping a healthy diet and doing what you can do on any given day, without overdoing it, seems to be key takeaways for all this.
Ginger

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Replies to "@nbadry Nicole, I am taking Revlimid for multiple myeloma. I have been on it since August..."

Ginger, thanks for responding. Unfortunately last week a CT scan incidentally found that I have an unrelated retroperitoneal sarcoma. Seeing the oncological surgeon in a week. I have no idea how this impacts my eligibility for Revlimid (and I'm seriously doubt I'll still eligible for an SCT down the track). I'm reeling 😭