Replies to HUGE sigh and I understand about both being stubborn and about eventually giving up. Like you,…

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Ear, Nose & Throat (ENT) | Last Active: Oct 27 4:59pm | Replies (22)

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@jeindc

HUGE sigh and I understand about both being stubborn and about eventually giving up. Like you, I keep wondering "aren't they reading what I am?", "aren't their medical conferences or other resources providing guidance for how to speak with us?" and so much more.

I don't drive and have physical mobility issues (pre-COVID and post-COVID) - each appt. requires finding someone to take me. YES it is expensive for it all not to mention time and exhaustion. I've only dropped or been dropped by the post-COVID specialist - which I find "amusing" in a very not good way! I see my PCP, dentist (for the mouth rash that came with COVID - he is so kind and has no answers), and a few others that I must to ensure I get the medications I need.

Here's to us and maybe a breakthrough soon.

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Replies to "HUGE sigh and I understand about both being stubborn and about eventually giving up. Like you,..."

dloos | @dloos | Oct 21 11:51am

I must say that almost all the people I have seen have seemed genuine in wanting to help me, but they don’t know how. They treat me for a condition that is similar to my symptom, and not surprisingly, it doesn’t help me.
The hearing aids don’t really help. I had balloon inflation of my Eustachian tubes, it did not help.
I had cataract surgery on my eyes. Nope, not the real problem.
So, finally I must accept that there is no treatment for what ails me. If my condition were stable I might be able to adjust. Unfortunately my condition is always changing. I now have not only muffled hearing, but hyperacusis and tinnitus. My vision, and dry eye continue to worsen. I hate to think where I may be in a year!
I’m not sure a “breakthrough” can correct damage that has already been done.
I had always been a healthy person and I am really a terrible invalid! I went from being a very active senior, to being mostly home bound. It is depressing and also makes me MAD.

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