← Return to Long COVID-hearing loss and tinnitus

Discussion

Long COVID-hearing loss and tinnitus

Ear, Nose & Throat (ENT) | Last Active: Oct 27 4:59pm | Replies (22)
Comment receiving replies
@jeindc

Reading your posts backward, @dloos - so another response:
I'm "only" 19 months in and am trying my best to manage tho' today for some reason it all just 'hit' and I wanted to do anything except work! I'm old (77) and work for myself and have for 43 years and so if I don't there's no income except piddly social security (for which I AM grateful!) I needed to write a recap of the ENT visit to the other docs I see, all for long COVID OTHER symptoms bec they all aren't communicating, even via my PCP. How you've managed for 3 years and far more doc visits than I is what I know I'm facing - it's exhausting and too many different opinions and no deep look.

I seem to read far more than any of the docs. I have a google alert set up for Long COVID/Post COVID and try to even read academic papers. Why are we not heard? < -- that's rhetorical probl.

Thank you for your empathy. This group helps. I at least can say "I read in the Mayo group ...." To all of us and to all who don't have access to a computer or this group or have no idea what ails them may be this.

Jump to this post

Replies to "Reading your posts backward, @dloos - so another response: I'm "only" 19 months in and am..."
dloos | @dloos | Oct 21 10:56am

Frankly, all my doctor appointments have been meaningless. I have honestly had hundreds of appointments because I guess I’m stubborn and really hate to give up. Two or three appointments a week for almost three years add up. I am finally to the point where I am ready to say this is what it is. Getting to the appointments is hard, and really has gotten me nothing. It’s just been hard (understatement) to accept that there is NO HELP.
I continue to see my PCP every few months and I am currently seeing a Neuro Optometrist for blurry vision. I am about to stop those appointments because he hasn’t helped me either.
I wish I had better advise for you, but my experience has been so terrible.
I find listening to meditation type music helps me during the day, and an air purifier fan helps me to relax enough to sleep some at night. My PCP will prescribe Klonopin (many doctors will not). I take a very low dose and it helps me with anxiety.
That’s about all I can offer as to things that have helped me somewhat.
I’m so sorry you are suffering with this too.

VIEW AND REPLY