Orgovyx and zytiga side effects

Not sure how much longer I’ll be able to do it, hence the initial question I posed which was should I expect it to worsen. My takeaway from the posts here is it will get more difficult. Thanks.

I plan on asking my MO about lessening the dose of ADT if my PSA is still at < .01 this coming week. I ll be doing my heart a favor and lowering my glucose level at the same time.

Spoke to my oncologist on Monday. After being on Lupon and then Orgovyx for eight years it is unlikely my testosterone will come back if I stop taking Orgovyx. She agreed and said it was fine for me to stop Orgovyx. I asked her to just have my testosterone tested monthly like my PSA. I am on just Darolutamide for now. My PSA has been less than .1 for 11 months. Now it’s just a matter of how long I can go before Darolutamide fails me.

I have watched what I eat for the last few years. My latest A1c is 5.4 so I’m pretty sure stopping Orgovyx isn’t gonna help my blood sugar level. I know some people have a real problem with keeping there blood sugar down.

Good luck with your attempt to reduce drugs. What are you on besides Lupron/orgovyx?

Been on Trelstar since 12/2022. Been on ADT since 1/17/2023 --Arbiterone/Prednisone. The doc is only 42....has great credentials...will see him on the 31st of this month. I see your planning on Darolutamide failure...I d have to research that drug...thanks for the info. The nurse tells me Lupron adminstration has a much larger needle and hurts more...lol

I have never heard of anyone using Trelstar. Are you in the United States? I was getting six-month Lupron shots and never really felt much of anything when they gave them to me.

When I was on Arbiterone for a couple of years. I asked my oncologist about reducing it to maybe help with the brain fog. She said fine. Go ahead and cut it down to three pills. My last PSA was .2 I switched to three pills 18 days before my next PSA test, PSA went up to 1 in 18 days. Not a very successful test though it did enable me to get a PSMA Pet test finally since my PSA went up so much. That’s the problem with BRCA2, it resents you trying to do anything to make you feel better.

By the way Trelstar is your ADT drug. Arbiterone is an anti androgen referred to as an ARSI not ADT.

Afters Zytiga stops working for you moving to Darolutamide is the preferred step. Lancet had an article about it, if you’re interested I could send you the link. Darolutamide has the least side effects of all the lutamide drugs.

I have never heard of anyone using Trelstar. Are you in the United States? I was getting six-month Lupron shots and never really felt much of anything when they gave them to me.

When I was on Arbiterone for a couple of years. I asked my oncologist about reducing it to maybe help with the brain fog. She said fine. Go ahead and cut it down to three pills. My last PSA was .2 I switched to three pills 18 days before my next PSA test, PSA went up to 1 in 18 days. Not a very successful test though it did enable me to get a PSMA Pet test finally since my PSA went up so much. That’s the problem with BRCA2, it resents you trying to do anything to make you feel better.

By the way Trelstar is your ADT drug. Arbiterone is an anti androgen referred to as an ARSI not ADT.

Afters Zytiga stops working for you moving to Darolutamide is the preferred step. Lancet had an article about it, if you’re interested I could send you the link. Darolutamide has the least side effects of all the lutamide drugs.

Triptorelin= Trelstar . I m in michigan

One pill of Arbiterone I take with a low fat breakfast with food. Works fine so far til I find out tomorrow. Bloodwork. No need to take 4 Arbiterone a day.

I have never heard of anyone using Trelstar. Are you in the United States? I was getting six-month Lupron shots and never really felt much of anything when they gave them to me.

When I was on Arbiterone for a couple of years. I asked my oncologist about reducing it to maybe help with the brain fog. She said fine. Go ahead and cut it down to three pills. My last PSA was .2 I switched to three pills 18 days before my next PSA test, PSA went up to 1 in 18 days. Not a very successful test though it did enable me to get a PSMA Pet test finally since my PSA went up so much. That’s the problem with BRCA2, it resents you trying to do anything to make you feel better.

By the way Trelstar is your ADT drug. Arbiterone is an anti androgen referred to as an ARSI not ADT.

Afters Zytiga stops working for you moving to Darolutamide is the preferred step. Lancet had an article about it, if you’re interested I could send you the link. Darolutamide has the least side effects of all the lutamide drugs.