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Is there anything to help stop or slow progression of MGUS?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (41)Comment receiving replies
My MGUS founded over 12 years ago. I'm 54 years old now. They haven't got any treatment or advices, only blood tests once a year and I can only hope that the results are as bad as every other year. When I was working at the school where were mold (I'm sick from mold since 1980), the IgA get higher. But here in Finland nobody knows anything about MGUS or how I quickly I'll got infected by viruses, COVID or adeno or so. I don't even remember, when I felt myself healthy. I think I have long COVID, but here in Finland they don't even notice that either. So lonely with my problems.
Replies to "My MGUS founded over 12 years ago. I'm 54 years old now. They haven't got any..."
I’m doing the plant based and in 6 months my IgG kappa came down O.6 better than before constantly going higher however my IgM still is below normal. My Hem-Onc dr told me no chemo until kappa lambda ratio is above 50 since the drugs can cause lymphoma. Is that why aj you were told not to treat yet? If you are symptomatic you might need treatment though the bones might be an indicator do you get alkphos blood test and X-ray of bone? That might help. I do feel the plant based is better.
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You are young for the diagnosis. I was 55 when diagnosed with IgA. I am being treated for mast cell activation syndrome as well. I am 60 now.
I take pepcid, Allegra, claritin, vitamin d and benadryl everyday. My IgA went down for the first time this year but my lambda light chain went up a bit.
My father-in-law had MGUS which became Multiple Myeloma and was treated 8 years ago and is free of it today at 85.
My brother's mother-in-law was not diagnosed with MGUS so her Multiple myeloma had progressed before diagnosis and she passed away just a year after diagnosis.
It is about early diagnosis and treatment.