← Return to Liver transplant - Respiratory Syncytial Virus (RSV) Vaccine ABRYSVO

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@mkhogan

Well. It would help nice if mayo transplant would send out more comprehensive information to their patients through newsletters or Portal. I have often read about vaccine recommendations or current RSV upsurge through media or the general mayo Facebook I :"follow" just because I saw it and joined one day. When I have messaged my nurse coordinator about whether yo do things, the response will usually be, yes. We recommend that. Always baffles me as to why they don't act more proactive on their preventative care and post care. I would expect that be a critical role of the department care. I have too often found that lacking. I know people are busy. The on going care and health of our transplants is a delicate balance. Even this group i stumbled upon after over three years post. This should be more prominently discussed. Not just a slop of paper placed in a large discharge oackat. Not even sure they put it out that way. . There is so much good information here, but even this is our experiences not necessarily correct information. But I have found so much guidance here. It at least gives me things to ask about. . Thanks for information and I apologize for my side venting. Just see areas of need

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Replies to "Well. It would help nice if mayo transplant would send out more comprehensive information to their..."

@mkhogan, my understanding is that communication and guidelines are sent to all Mayo Clinic transplant patients through various means, including mail, the patient portal as well as the Mayo Clinic transplant social media platforms. Perhaps @keggebraaten can confirm.

You'll be pleased to hear that placement of information Mayo Clinic Connect continues to grow. You should see it in the patient portal as well as in strategic places on Mayo Clinic's website, in patient information handouts, in our patient libraries and much more. 🙂