Anyone have abdominal pain with an indwelling urinary catheter?

Posted by gordy6898p @gordy6898p, May 20, 2023

Anybody here an indwelling urinary catheter?....

My "Foley" catherter is exchanged each month by myself, which the VA allows (I'm an Air Force veteran).

I flush it daily with a saline solution. If not flushed routinely, it plugs within a couple weeks.

My problem...

I'm awakened each night by lower abdominal pain after sleeping only 4 or 5 hours. I'd put pain level at about 5 on a scale of 1-10.

It's only a problem at night. Once I'm up and moving around the pain disappears, or falls to less than level 1 within 5 or 10 minutes.

However, any time I push against my lower abdomen it's quite painful... about level 5.

In the past six months, the VA has scanned with ultrasound, Xrays, MRI, and recently "CT of the abdomen and pelvis with intravenous constrast."

The results of this latest test being that my liver, kisneys, prostate, and intestines are functioning normally.

Seems to me that rules out everything else but my bladder as the pain source.

The CT exam mentions "The bladder wall demonstrates diffuse bladder wall thickening and prominence of the superficial vascular structures sugesting inflammation."

The "...suggesting inflammation." part leads me to think that is the most likely source of pain. Perhaps there's an infection.
If so, what can be done?

Doctors at the VA hospital in Madison, Wisconsin seem to be baffled by the source... weird!

Anybody here also having a similar problem?

Interested in more discussions like this? Go to the Bladder Conditions Support Group.

Profile picture for slkanowitz @slkanowitz

Are you constipated even with daily Miralax? The dose can be adjusted upward quite a bit to get the right amount. I have been taking Miralax mixed with Metamucil in a 3/4:1/4 ratio. The metamucil adds some bulk to the stool helping it move along. I use generics for both. I wonder if you have a redundant (extra long and loopy). That makes too much water be absorbed from the stool resulting in consipation. Sometimes surgery to remove some colon is advised. I assume you are on a celiac diet? I have a similar problem with CC and it’s miserable. So sorry you’re dealing with this! I have times where I get so blocked up i take 8 caps of miralax over 2-3 hrs and that clears it. It’s like doing a colonoscopy prep mini style.

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slkanowitz,
YEP!! I have been using miralax mega doses for 15+ yrs. I recently changed to Metamucil gummies, they don't cause near the bloating and gas I get with the powder form. I just found out that I have a redundant splenic flexure, since 99% this congenital. My frustration has turned to anger since I have had this for 65 yrs...my doctor still didn't tell me about this, 1 radiologist noted it on a CT scan. I have not read that the redundant makes too much water, would you please explain this further?
Yes, 95% GF. I actually don't eat a lot of solids I just so fearful of another small bowel partial obstruction (had 3, 2 cleared up by eating barely any food, I used, and still have meal replacement shakes) 1 got me an ambulance ride and ER to ICU 4 days in the hospital and that awful nasal gastric tube. I have had 4 blockages just inside the anus, that required digital removal, by me, OMG, this is hell!!!! I just had parathyroid surgery, it can cause CIC, hopefully it will get better soon. I also use magnesium oxide daily for a bit of help with the CIC and Hypersomnia.
What do you typically use daily?
ShelleyW

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Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

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Shelley, I’m so sorry no one told you about the redundant colon for so many years. It is quite common and there is like you mentioned a hereditary component. I have a redundant colon as well and suffer from chronic constipation. I take a mixture of Metamucil 1/4 to MiraLAX three-quarter combination. It seems to work best for me. Because the colon is extra long more water is absorbed from the stool, which is the main purpose of the large intestine. So the stool gets harder and more difficult to pass. In severe cases of redundant colon, surgery can be done to remove part of the colon especially where the loops are . You have had terrible problems with this, and I certainly understand your anger and frustration that you were not given this information earlier when you could’ve been more proactive at preventing some of the problems you’ve had. I am a strong proponent of everyone reading their own imaging reports and lab reports , because these important bits of information slip through the cracks and go unnoticed all the time, putting patients at risk. The Metamucil adds bulk to the stool which helps it move through the G.I. tract whereas the MiraLAX adds water to the stool, so it counteracts the excessive water absorption by the long colon. I hope you are able to get this resolved and prevent further obstructions. I was hospitalized once at the Mayo Clinic for an impaction that made me terribly ill, and it was resolved by doing a colonoscopy prep routine with MiraLAX. Chronic constipation predisposes to diverticulosis and diverticulitis so keeping the bowel moving is crucial for prevention of those complications.

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Profile picture for slkanowitz @slkanowitz

Shelley, I’m so sorry no one told you about the redundant colon for so many years. It is quite common and there is like you mentioned a hereditary component. I have a redundant colon as well and suffer from chronic constipation. I take a mixture of Metamucil 1/4 to MiraLAX three-quarter combination. It seems to work best for me. Because the colon is extra long more water is absorbed from the stool, which is the main purpose of the large intestine. So the stool gets harder and more difficult to pass. In severe cases of redundant colon, surgery can be done to remove part of the colon especially where the loops are . You have had terrible problems with this, and I certainly understand your anger and frustration that you were not given this information earlier when you could’ve been more proactive at preventing some of the problems you’ve had. I am a strong proponent of everyone reading their own imaging reports and lab reports , because these important bits of information slip through the cracks and go unnoticed all the time, putting patients at risk. The Metamucil adds bulk to the stool which helps it move through the G.I. tract whereas the MiraLAX adds water to the stool, so it counteracts the excessive water absorption by the long colon. I hope you are able to get this resolved and prevent further obstructions. I was hospitalized once at the Mayo Clinic for an impaction that made me terribly ill, and it was resolved by doing a colonoscopy prep routine with MiraLAX. Chronic constipation predisposes to diverticulosis and diverticulitis so keeping the bowel moving is crucial for prevention of those complications.

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slkanowitz,
You should be a guest lecturer at a GI conference and teach the 👿💩🤬💩👿idiots that think they know our bodies better than we do. You should charge them $$$$$ to relearn what they should already know from med school.
Oh!! Part of your program would be that they MUST be 💩💩💩for a full week prior to your lecture... not even 1 of these doctors could handle it. ShelleyW

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Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

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Shelley, I would if I could! I actually love teaching and explaining things in terms people understand. I hate that medical jargon is flung at patients, making them feel ignorant and embarrassed to ask what it all means. It’s one of the reasons I am here. I do appreciate your suggestion spiced with anger but humor😀

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Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

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So sorry to hear how you’re feeling. Just a thought since I’m not a doctor. You may possibly be dehydrated. I was and didn’t know it. My bowel movements became loose and more frequent. I had some aches on my left side. My doctor diagnosed me and recommended electrolytes twice a day plus drinking more healthy fluids plus water. From your description, your food intake is low and drinking 7 up isn’t the best route.
Straight Bone broth is good to drink, electrolytes that are low sugar, soups that are broth based with vegetables to increase your fluid plus food intake along more water may help since you do not want to go to the doctor.
Best to you.
G.

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Profile picture for gigi4 @gigi4

So sorry to hear how you’re feeling. Just a thought since I’m not a doctor. You may possibly be dehydrated. I was and didn’t know it. My bowel movements became loose and more frequent. I had some aches on my left side. My doctor diagnosed me and recommended electrolytes twice a day plus drinking more healthy fluids plus water. From your description, your food intake is low and drinking 7 up isn’t the best route.
Straight Bone broth is good to drink, electrolytes that are low sugar, soups that are broth based with vegetables to increase your fluid plus food intake along more water may help since you do not want to go to the doctor.
Best to you.
G.

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gigi4,
Thanx for your kind advice. You are right about the 7-up, I sip on it and for some reason it doesn't upset my stomach...and after just having surgery in my neck, I get terrified of vomiting, I don't vomit in a ladylike manner. My whole body goes through a violent cycle, lifting completely off my knees and I hug the cold toilet because my entire body feels on fire.
You are right about the broth too, but it makes me sick, I have tried diluting it, it helps a bit. Fortunately, I have always been a heavy water drinker. Your response reminded me that I have good electrolytes, that my daughter researched for me, I will get them going. Thanx for your help ShelleyW

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Profile picture for TSB @terrirussell

There are some real similarities to what I have which is Mast Cell Activation Syndrome……your body reacts to foods w any histamine in them to speak of. I was sick and tired of being sick and tired literally and the regular protocol for this is vegetarian eating that made me so much sicker . I decided that I would eat according to my blood type from the book Eat Right 4 Your Type. So I went on the Carnivore diet by Shawn Baker. I am O+. Which was formed by meat eaters. Holy moly, I started to get well within 12 hours after about 7 months virtually in bed w horrible brain fog. My problems started as a reaction to the covid booster. Boom! Lesions all over….food made me worse histamines went crazy. As soon as I got on carnivore, it all stopped. I eat no histamines to speak of. Mayo didn’t know what to do w me either. The only Dr. Who honored what I told him 5 months after I got myself well, I thought, was an allergist immunologist . He did blood work that screamed histamine imbalance and put me on GL infusions once a month. But he told me “ you saved your own life! “……… I do have Ehlers Danlos and apparently 30 % of us can acquire this problem. However I’ve been approached by at least 6 others who could not get well and who don’t have EDS. They also had huge success on Carnivore diet. Shawn Baker is on You tube too….I got his book….you might want to check it out. What have you got to lose?

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Did the ER do a CT on your abdomen ? The reason I ask is bc they did that for me and found out I had Messinteric Panniculitus !
Which is very rare and people with Connective Tissue Disorder . CTD There’s nothing the Doctors can do but give you over the counter pain meds.

The pain was excruciating and before that I had an Inigual Hernia - which was removed. They also took out 2- lipolmas.

Anther thing is - I was diagnosed with Diastasis Recti- and my kids ( twins)
We’re in there 30’s. It’s why my stomach sticks out when I did crunches.

I have vHEDS vascular type 4 undiagnosed but I did do Ancestry and Secqencing. WH h basically helped me type mine.

I also did hair analysis which told me I was completely missing 4 - Gut enzymes- so I started taking Pancreatine from Amazon.

To be honest in the past 5 years - I’ve been hit hard with a whole bunch of issues. Stay strong and do squats and get a vibration platform .

Best wishes 💗

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Profile picture for steve74 @steve74

Hello all, thank you for sharing your thoughts.For over two months now, I have been dealing with abdominal pain and dry heaving. I have had a few good days when it doesn't seem so bad but most days I am retching several times a day with abdominal discomfort throughout the day. I never actually vomit, just dry heaving. It can happen in the middle of the night, waking me up from sleep, just after I wake in the morning, or in the evening. Sometimes it happens during the day as well but generally I don't have the retching during the day. My bowel movements have been mostly normal and regular but I'm burping a lot before / after the retching. I haven't lost my appetite entirely but I'm eating less just because of not feeling well and have lost 15 pounds in the last two months without trying to loose weight. I do not drink alcohol or smoke. I have been tracking what I'm eating and making sure not to eat close to bed time but I'm not seeing anything that could be a trigger.I have been seeing a GI doctor and he has ordered every test he can think of but all of the results come back normal. I have had an endoscopy, colonoscopy, biopsies, ultrasound, abdominal CT scans, MRI, and all sorts of blood tests. Nothing the Dr can see that he thinks would cause my symptoms but something is clearly wrong. Dr says there is no sign of stomach or colon cancer. Negative for H Pylori, Porphyria and Celiac. Blood tests all show normal function levels for liver, kidney, etc. The only things they did find was fatty liver, a lesion on liver (less than 1 cm) and abdominal aortic aneurysm but in each case Dr said they were minor and not at a point to cause concern. Tums, Pepcid, and other OTC acid reducers don't help.At this point Dr, is saying he can try to prescribe nausea meds to see if that helps but I feel like he is sort of giving up on finding a cause and just offering to treat the symptoms. I have been trying to get appointments with other Dr for second opinion but it takes months to get an appointment.I don't know if there is any other tests I should ask for or what to try next. Thanks for sharing your thoughts.

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If you ever had abdominal surgery you could have the scar tissue pulling on your small bowel. Sometimes enough to kink it like a plastic garden hose. Small foods and liquids pass but raw vegetables or larger foods sort of get hung up. An X-ray with dye passing through would pick this up.

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Profile picture for steve74 @steve74

Hello all, thank you for sharing your thoughts.For over two months now, I have been dealing with abdominal pain and dry heaving. I have had a few good days when it doesn't seem so bad but most days I am retching several times a day with abdominal discomfort throughout the day. I never actually vomit, just dry heaving. It can happen in the middle of the night, waking me up from sleep, just after I wake in the morning, or in the evening. Sometimes it happens during the day as well but generally I don't have the retching during the day. My bowel movements have been mostly normal and regular but I'm burping a lot before / after the retching. I haven't lost my appetite entirely but I'm eating less just because of not feeling well and have lost 15 pounds in the last two months without trying to loose weight. I do not drink alcohol or smoke. I have been tracking what I'm eating and making sure not to eat close to bed time but I'm not seeing anything that could be a trigger.I have been seeing a GI doctor and he has ordered every test he can think of but all of the results come back normal. I have had an endoscopy, colonoscopy, biopsies, ultrasound, abdominal CT scans, MRI, and all sorts of blood tests. Nothing the Dr can see that he thinks would cause my symptoms but something is clearly wrong. Dr says there is no sign of stomach or colon cancer. Negative for H Pylori, Porphyria and Celiac. Blood tests all show normal function levels for liver, kidney, etc. The only things they did find was fatty liver, a lesion on liver (less than 1 cm) and abdominal aortic aneurysm but in each case Dr said they were minor and not at a point to cause concern. Tums, Pepcid, and other OTC acid reducers don't help.At this point Dr, is saying he can try to prescribe nausea meds to see if that helps but I feel like he is sort of giving up on finding a cause and just offering to treat the symptoms. I have been trying to get appointments with other Dr for second opinion but it takes months to get an appointment.I don't know if there is any other tests I should ask for or what to try next. Thanks for sharing your thoughts.

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@steve74 if you have an AAA (Abdominal Aortic Aneurysm), that should be of concern. It should not get to the point where you need surgery. Most people don’t survive the surgery. You need to see a vascular specialist who hopefully will keep this aneurysm under control by making sure your blood pressure is not elevated and doing whatever else is needed so the aneurysm does not get larger. I had a friend whose aneurysm was allowed to get to 6.5cm then was told she has to have surgery. She did not survive the surgery.

Not saying this to alarm you, but just find a vascular specialist to keep an eye on it. After my friend died I read somewhere that pressure on the aneurysm can be relieved by a stent being inserted in the artery. In any case, if your blood pressure tends to be on the higher end, try to keep it in the normal range.
https://www.mayoclinic.org/diseases-conditions/abdominal-aortic-aneurysm/diagnosis-treatment/drc-20350693

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Profile picture for steve74 @steve74

Hello all, thank you for sharing your thoughts.For over two months now, I have been dealing with abdominal pain and dry heaving. I have had a few good days when it doesn't seem so bad but most days I am retching several times a day with abdominal discomfort throughout the day. I never actually vomit, just dry heaving. It can happen in the middle of the night, waking me up from sleep, just after I wake in the morning, or in the evening. Sometimes it happens during the day as well but generally I don't have the retching during the day. My bowel movements have been mostly normal and regular but I'm burping a lot before / after the retching. I haven't lost my appetite entirely but I'm eating less just because of not feeling well and have lost 15 pounds in the last two months without trying to loose weight. I do not drink alcohol or smoke. I have been tracking what I'm eating and making sure not to eat close to bed time but I'm not seeing anything that could be a trigger.I have been seeing a GI doctor and he has ordered every test he can think of but all of the results come back normal. I have had an endoscopy, colonoscopy, biopsies, ultrasound, abdominal CT scans, MRI, and all sorts of blood tests. Nothing the Dr can see that he thinks would cause my symptoms but something is clearly wrong. Dr says there is no sign of stomach or colon cancer. Negative for H Pylori, Porphyria and Celiac. Blood tests all show normal function levels for liver, kidney, etc. The only things they did find was fatty liver, a lesion on liver (less than 1 cm) and abdominal aortic aneurysm but in each case Dr said they were minor and not at a point to cause concern. Tums, Pepcid, and other OTC acid reducers don't help.At this point Dr, is saying he can try to prescribe nausea meds to see if that helps but I feel like he is sort of giving up on finding a cause and just offering to treat the symptoms. I have been trying to get appointments with other Dr for second opinion but it takes months to get an appointment.I don't know if there is any other tests I should ask for or what to try next. Thanks for sharing your thoughts.

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@steve74 I really hope someone here can provide some suggestions for what other tests could be run. I’m glad you’re pursuing a second opinion. Something is clearly wrong and needs a second expert review. Wishing you all the best and keep pushing for answers 🙏

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