Hi,
Unfortunately I have Autonomic polyneuropathy to be precise, no cure and no treatment known to date. It has taken around 13 years to get a diagnosis after all manner of diagnosis proving incorrect. So far my digestive system entirely is compromised from throat to bowels and everything inbetween. My BP, eyes, brain, memory, speach, gait, vertigo, ability to walk and stand still are all compromised. My BP remains high regardless of medications which I'm intolerant to and suffer the side effect of the current pill in order to stop the intense migrains 24/7. So now I have to deal with headaches most of the time from the BP pill. ANS is one very invasive disease I can only wish on my emimies, had I had any. Touch wood it has left my heart mostly alone which is great as it has the ability to stop the heart without warning instantly.
How do I live like this, well, we all die sooner of later, I may die sooner but as none of us have a finite date I deal with each day I wake and careless about the day I don't wake. I try not to let this disease control my life and do pretty much as I please or can despite it. I have had TIA's, paralysis from the waist down left standing unable to get the legs to move for minutes, AF of the heart and lost the ability to speak momentarily along with heaps more random symptoms that keep on coming my way. I have a bad habit of pushing my body to the extremes, likely a death wish, but no, it keeps on going despite the thrashing I give it.
Once again ANS has pushed me back into SIBO from the digestion problems ANS controls.
Cheers