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Retinal Vein Occlusion

Eye Conditions | Last Active: Oct 20 6:26pm | Replies (29)

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@richardab

My vision started dimming a few weeks back and I was having floaters and black dots across my vision. I had an appointment with my heme/onc (Smoldering Myeloma) and told him about my eyes. He pretty much blew me off (he's no longer my heme/onc) as it wasn't cancer related and I called an opthamologist right after this appointment. He saw me immediately, diagosed CRVO in my left eye, and referred me to a retina specialist. I had my first anti-VEGF injection a few days ago and will get another in about a month, with more probably every month as needed. I have Smoldering Myeloma and an autoimmune disorder although an exact cause isn't known. I don't have any of the usual suspects.

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Replies to "My vision started dimming a few weeks back and I was having floaters and black dots..."

@richardab, When I noticed odd lights in my vision, I contacted my PCP. He sent me to my Opthamologist who sent me to the Retina specialist who saw me the next day. My diagnosis was BRVO (Branch Retinal Vein Occlusion). I also had injections monthly/6 weeks apart for a while, then they were spaced further apart, then they were weekly, further apart ...as indicated by the retina scans that he used. The good part for me is that eventually my condition stabilized and the blood leakage stopped. I am still checked by my opthamologist and will be sent back to retina specualist when/if there is a change.
As for my vision, I have a blurry spot in the vision of my affected eye. My other eye (says opthamologist) is compensating for the damage.
I am immunosuppressed due to organ transplant, but that has been ruled out as a cause. The retina doctor said that it looks to be a physical factor related to way the veins are arranged in the rear of my eye,
I found it helpful to take a tylenol and to lie down with a cool wash cloth over my eyes when I got home from the appointment. I was not allowed to drive home and had to bring a driver (husband). How did your first injection go for you?