Autonomic neuropathy - blood pressure and heart rate?

Posted by cptsnake @cptsnake, Oct 19 9:11am

It mainly affects my heart. If I exercise my blood pressure and heart rate drop. Most likely caused by psoriasis any autoimmune disease. I am 77, normal weight 6 ft, 170 pounds. My heart is good, arteries are clear. No other heath issues. Is there anything that can raise my blood pressure? I think it must be a hopeless attempt.

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That's quite an odd situation. Most times, exercise raises one's blood pressure. Have you visited any docs, like a cardiologist? Or, perhaps done some online searches? I just did one...and came up empty handed. Guess it is not a common thing. Are you using a high quality BP cuff. I don't trust those wrist cuff. Good luck on this one, my friend.

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I really don't like getting involved with the Heath Industrial Complex! They want patients not health people. No cardio neuropathy is common. It's under autonomic neuropathy.
I was going to go to a neurologist, but I am having second thoughts. It will just be endless test and a waste time and money, and I would be in the same place. Can't put links here.

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Hello @cptsnake, I would like to add my welcome along with @heisenberg34. You will notice that we added a little to your discussion title to hopefully bring others with experience into the discussion. You mentioned that you can't post links. New members are prevented from posting links for a short period of time to prevent advertising and spamming on Connect. I'm not sure if you have seen this reference on your question but thought it might provide some information on the topic and does list some treatments and supplement suggestions.

-- Cardiac autonomic neuropathy: Risk factors, diagnosis and treatment
https://pmc.ncbi.nlm.nih.gov/articles/PMC5763036/
I do agree with @heisenberg34 that it would be good to discuss your symptoms with a cardiologist.

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Hi,
This can happen with Autonomic neuropathy. The Autonomic nerve system can play havoc with all the automatic features of the body we don't need to think about to have happen, like heart, lungs, throat, digestive system and more. The interferance can be random and or permanent. I have some that have become permanent while more that are randomly occuring. My BP drops with excessive physical activity and has done for the last 2 years. The interferance from ANS is increasing with some features now permanent while yet others are still random and varied from day to day. Only once did it affect the heart, fortunately it is one of the organs that is least affected by ANS for me. I'm well aware that could change at any moment so I try to not overdo anything, everything in moderation suits me best now.
Cheers

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Well, I don't have type 1 and type 2 diabetes mellitus. I don't eat junk food or refined food. I bought a box of sugar and it was only half used in 25 years. I take D-3 50000 units, zinc, cod liver oil, B complex, Vitamin E, and Boron. My problem is neurological; a cardiologist could not help. My heart is perfect, test have been run. I am not a big fan of doctors, 80% or more are worthless. Test, test,test...then yes you have what you told me. Meanwhile I've wasted time. I also have Reynard Syndrome.It really doesn't matter anyway. I am 77...whats the point, and what has happened to the world in the last 60 years is not encouraging. World population doubled from 1970 to the present from 4 to 8 billion pollution is killing off the animals, war is a constant. USA has been at war my entire life and what for???? Vietnam...what was that for except to make money. Really, I've seen enough. I'll just keep going until I stop.

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@cheyne

Hi,
This can happen with Autonomic neuropathy. The Autonomic nerve system can play havoc with all the automatic features of the body we don't need to think about to have happen, like heart, lungs, throat, digestive system and more. The interferance can be random and or permanent. I have some that have become permanent while more that are randomly occuring. My BP drops with excessive physical activity and has done for the last 2 years. The interferance from ANS is increasing with some features now permanent while yet others are still random and varied from day to day. Only once did it affect the heart, fortunately it is one of the organs that is least affected by ANS for me. I'm well aware that could change at any moment so I try to not overdo anything, everything in moderation suits me best now.
Cheers

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True, once in awhile my pressure is high, but then drops. By the way my medical knowledge is above average. I worked as a professional sale rep for both Park&Davis and CIBA in the 1970 and 1980's. You would be amazed to see the multitude of worthless doctors. When I was 70, had a heart block due to a virus from bacterial pneumonia. Developed pericarditis, caused it. A doctor that I have never scene, stopped by felt my pulse and charge my insurance $200.00. It's all about greed and testing for $$$$$$

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@cptsnake

True, once in awhile my pressure is high, but then drops. By the way my medical knowledge is above average. I worked as a professional sale rep for both Park&Davis and CIBA in the 1970 and 1980's. You would be amazed to see the multitude of worthless doctors. When I was 70, had a heart block due to a virus from bacterial pneumonia. Developed pericarditis, caused it. A doctor that I have never scene, stopped by felt my pulse and charge my insurance $200.00. It's all about greed and testing for $$$$$$

Jump to this post

Hi,
Unfortunately I have Autonomic polyneuropathy to be precise, no cure and no treatment known to date. It has taken around 13 years to get a diagnosis after all manner of diagnosis proving incorrect. So far my digestive system entirely is compromised from throat to bowels and everything inbetween. My BP, eyes, brain, memory, speach, gait, vertigo, ability to walk and stand still are all compromised. My BP remains high regardless of medications which I'm intolerant to and suffer the side effect of the current pill in order to stop the intense migrains 24/7. So now I have to deal with headaches most of the time from the BP pill. ANS is one very invasive disease I can only wish on my emimies, had I had any. Touch wood it has left my heart mostly alone which is great as it has the ability to stop the heart without warning instantly.
How do I live like this, well, we all die sooner of later, I may die sooner but as none of us have a finite date I deal with each day I wake and careless about the day I don't wake. I try not to let this disease control my life and do pretty much as I please or can despite it. I have had TIA's, paralysis from the waist down left standing unable to get the legs to move for minutes, AF of the heart and lost the ability to speak momentarily along with heaps more random symptoms that keep on coming my way. I have a bad habit of pushing my body to the extremes, likely a death wish, but no, it keeps on going despite the thrashing I give it.
Once again ANS has pushed me back into SIBO from the digestion problems ANS controls.
Cheers

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@cptsnake

Well, I don't have type 1 and type 2 diabetes mellitus. I don't eat junk food or refined food. I bought a box of sugar and it was only half used in 25 years. I take D-3 50000 units, zinc, cod liver oil, B complex, Vitamin E, and Boron. My problem is neurological; a cardiologist could not help. My heart is perfect, test have been run. I am not a big fan of doctors, 80% or more are worthless. Test, test,test...then yes you have what you told me. Meanwhile I've wasted time. I also have Reynard Syndrome.It really doesn't matter anyway. I am 77...whats the point, and what has happened to the world in the last 60 years is not encouraging. World population doubled from 1970 to the present from 4 to 8 billion pollution is killing off the animals, war is a constant. USA has been at war my entire life and what for???? Vietnam...what was that for except to make money. Really, I've seen enough. I'll just keep going until I stop.

Jump to this post

I know what you are saying. I try to enjoy the sunrise, the trees, the sound of rushing water, my friends and family, and music. Lots of music. It has brought me so much joy and kept me sane through this crazy world we live in. Sending you positive thoughts and hoping you find solace in the beauty that still exists.

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@cheyne

Hi,
Unfortunately I have Autonomic polyneuropathy to be precise, no cure and no treatment known to date. It has taken around 13 years to get a diagnosis after all manner of diagnosis proving incorrect. So far my digestive system entirely is compromised from throat to bowels and everything inbetween. My BP, eyes, brain, memory, speach, gait, vertigo, ability to walk and stand still are all compromised. My BP remains high regardless of medications which I'm intolerant to and suffer the side effect of the current pill in order to stop the intense migrains 24/7. So now I have to deal with headaches most of the time from the BP pill. ANS is one very invasive disease I can only wish on my emimies, had I had any. Touch wood it has left my heart mostly alone which is great as it has the ability to stop the heart without warning instantly.
How do I live like this, well, we all die sooner of later, I may die sooner but as none of us have a finite date I deal with each day I wake and careless about the day I don't wake. I try not to let this disease control my life and do pretty much as I please or can despite it. I have had TIA's, paralysis from the waist down left standing unable to get the legs to move for minutes, AF of the heart and lost the ability to speak momentarily along with heaps more random symptoms that keep on coming my way. I have a bad habit of pushing my body to the extremes, likely a death wish, but no, it keeps on going despite the thrashing I give it.
Once again ANS has pushed me back into SIBO from the digestion problems ANS controls.
Cheers

Jump to this post

I’m sorry you are dealing with so much. Can I ask what SIBO is?

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Hi, I sympathize. I've had sensory ganglionopathy since 2016. The bradycardia and hypotension were quite severe my first 2 years. It stabilized without meds until about 3 mos ago. I am currently on 2 week cardiac monitor and will follow with cardiologist. I'll be interested to see what my options are.
There are a number of auto immune diseases with these symptoms.

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