Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

Thank you cuddle bug . Very interesting, I shall have to read it another couple of times to digest it as it’s soooo long ! ( pardon the puns ).
But it’s always of interest to see how others cope and try different things 🙏
Best wishes
Sheila

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I would like join this group as I have a torturous twisted sigmoid colon

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Is this group still open. I couldn't find on facebook. how will I know if I'm in the group?

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Hi Jayne,
This is a long one too.
Disclaimer: This is only my experience going natural. I have used organic, integrative, functional, holistic Naturopathic doctor's advice along with my MD’s since the early 1980's. There is science in alternatives too. Because I work closely with my ND, he told me to study the Migrating Motor Complex and Osmotic Gradient and he bet that I would find what worked for me. It's how to keep a longer than normal pipe with consistent moisture…. My ND also said because my condition was physical, attention would be needed from now on.
I tried laxatives and they are not consistent and have side effects like bloating, etc. All say for occasional use. They disrupt the system if taken continuously. I liked a response from a co-redundant colon person: “It’s physical” so regular constipation suggestions may not work. Don’t give up because it took me 4 months to feel I could depend on being regular. It is worth going natural.
Last Dec the doc had me do non sedated colonoscopy. He went through my colon as I watched on TV. I had had a baby years ago (natural and could stand pain) so figured I could stand it – it was no big deal. Most people in world don't get put out. Very interesting and it helped allow the scope to get through because I relaxed. No wonder I had been constipation on and off starting in my teens. I’m now in my early 70’s.
OptiMag and K2+ Potassium are great supps. I take them when I go to bed and once when I get up to pee. I include prunes/prune juice, winter squash, sweet potatoes, rhubarb etc in my diet. I eat cups of steamed vegetables each day. I like to grind 2T chia, 1 T sesame seeds and 2 T flax seeds, then soak in prune juice overnight. I add a T of carob now since it can help regularity. Take half in the morning and half at night. Throw sugar out along with processed and refined foods. Look up foods and drinks that constipate and give them up. At least leave them out for a while. Drink lots of water starting with a quart of hot water in the morning - boy scouts. I use warmed up diluted chicken broth at times too. It is soothing to my stomach. Coffee and Smooth Move are my back ups. I don't like coffee and never have drunk it much but it usually works for me in a pinch. Thankfully I only need coffee a few times a month. Interesting it works backwards for you with coffee.
Check out helpful research of biological processes that take place in our gut:
- Migrating Motor complex which is the electroactivity in the GI tract during meals and fasting
- Osmotic gradient. If too much water is pulled into the colon, diarrhea results. If not enough water is pulled into the colon constipation results. Balance of minerals is important. Magnesium, potassium and sodium brings water into the colon. I have found balancing these help prevent constipation. I have to watch my calcium intake because it tends to encourage constipation. Calcium carbonate seems to be the most constipating. I depend on blood work from time to time to make sure my minerals are balanced.
I am overjoyed with my regularity but know if I get too stressed, don't drink enough fluid - dehydrated, don't exercise and or eat constipating foods like milk and cheese. I will need my back ups. Thankfully I seldom am irregular now. I have very ample regulars daily.
Good luck, @farmersmith

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I have a tortuous colon. I don't think it's that uncommon. I recently had a sigmoid colonoscopy and afterwards the g.i. told a few of his patients have same problem. After emailing multiple times about how I was evacuating fecus he said if I was interested he would give me a name of a surgeon who performs sigmoid colon resection. After reading some articles I was afraid and canceled the appt w surgeon. I am elderly woman.

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@dfloyd1133

I have a tortuous colon. I don't think it's that uncommon. I recently had a sigmoid colonoscopy and afterwards the g.i. told a few of his patients have same problem. After emailing multiple times about how I was evacuating fecus he said if I was interested he would give me a name of a surgeon who performs sigmoid colon resection. After reading some articles I was afraid and canceled the appt w surgeon. I am elderly woman.

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Try changing your diet, dfloyd1133, surgery is crazy for a bit of mucus! It could be an IBS-type symptom from a particular food item.

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@dfloyd1133

Is this group still open. I couldn't find on facebook. how will I know if I'm in the group?

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You must be in because you’re included in this conversation! 👍

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