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@ajbonett

I was diagnosed with MGUS about 2 1/2 years ago and have now progressed to Smouldering Myeloma. I joined a medical study out of MSK called a nutrivention study. Basically, they are looking to see if they can stop the progression of MGUS and Smouldering Myeloma through using a whole-foods, plant-based diet. I started the diet at the beginning of August and by the end of the month my M-Spike and light-chain ratio had dropped by more than half. I am now almost 3 months in and will have new labs drawn next week. I can't wait to see if they have dropped even further. I have also had a big drop in my inflammation which has helped my energy levels and lost 23+ lbs as of this morning. I feel like a new person. My husband is doing it with me and his cholesterol has dropped from borderline to perfect levels and he has lost 15 lbs.

Starting the diet wasn't as tough as we thought it would be. It's the elimination of dairy that is the hardest for us. But we have done a lot of research, gathered some fun recipes, and look at it as an adventure. We are learning to cook without oils, and we use mostly mushrooms and beans instead of tofu or "vegan meats." I forgot to mention that I limit my "added sugars" to less than 5 grams per day, and some days have no added sugars. Limiting the sugars is very important because cancer often uses them as "food" to grow.

I will also tell you that while my "study hematologist" and endocrinologist were thrilled with my results in such a short time, my regular hematologist was not. Earlier this week was the first time he saw my study results. He actually seemed a bit annoyed that I was going this route and feeling great. He kept asking if I was hurting anywhere and downplayed my test results even though they were there in black in white. I was very disappointed in him not acknowledging that I was doing better without any medical intervention.

So, to answer the question of both you and the OP... YES! There is something you can do. You will need to set your mind to it, but it is so much better than waiting and doing nothing, and then taking harsh drugs in a battle that you could possibly have avoided. I wish you well whatever you choose to do. Feel free to reach out privately if you want more information.

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Replies to "I was diagnosed with MGUS about 2 1/2 years ago and have now progressed to Smouldering..."

This is so positive. Thank you. Would you be willing to share some of your recipes or recommend how I might find some. I really want to try this diet. I feel like I have no control and am wondering how I might be able to help myself. I am really scared of the progression. Thanks so much.

OH WOW!!!! Congrads I went to see my hematology my levels just go up high but not to high and then low so its up and down. I don't any kinda of medicine for any of the pain I have I have to live with it day to day. I was by my hematology Dr that MGUS doesn't hurt but I don't know I've been hurting for years and I never have any energy tried all the time . So I had my
Physician run test for Lupus so now the blood levels are high for this also MY SED RATE is 43mm/hr its not suppose to go pass 30mm/hr so now off to see Rheumatologist Dr . So now I'm worried about this because it could either be Lupus which I don't have all the systems or it can be autoimmune disease which is scareds me. I will have to try this diet that your applying too what is the diet would like more information