ME/CFS

Posted by alineechelard @alineechelard, Oct 9 11:04am

Why isn’t there a support group for ME/CFS?It is much needed for support that is lacking and for understanding the complexities of the illness.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

this is absolutely necessary please

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@alineechelard - we are always expanding and evolving the community as it grows. In the meantime, using the search function at the top of the site can be useful to find current discussions on topics that may not yet have their own support group.

Here are a few I think you may find helpful:

"Help with Chronic Fatigue Syndrome" - https://connect.mayoclinic.org/discussion/help-with-chronic-fatigue-syndrome/

"Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments" - https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

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I agree with you so much!!! Every day is a fight and we need support!

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I have been following the research and evolution of the understanding of Long Covid for several years. There are many parallels between symptoms of ME/CFS and Long Covid, and the thought is that both are still somewhat mysterious responses to the body's assault by infectious agents. I recommend visiting the Bateman Horne Center, which has been doing research in ME/CFS for years, and is now one of the leading educators and resources for Long Covid. They have excellent resources for both patients and providers. Here's the link: https://batemanhornecenter.org

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I forgot to mention that, because of the similarity between the symptoms of ME/CFS and Long Covid, you may find the Post-Covid Recovery Support Group helpful. Link? https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

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