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6 months of unexplained twitches throughout body, high WBC

Posted by berber19 @berber19, Oct 9 1:27am

Hi all,
Am a 37 yo female healthy and work in healthcare.

6 months ago I woke up to heart palpitations. After a week of this, and then feeling “off” during one day, decided to go to urgent care. My ekg was way off and they sent me to ER. Initially they found nothing expect abnormal ekg, then I came back 4 hours later with worsening palpitations and my potassium was way low.

Cardiologist tests all normal.

After all this scare I stated having body twitches, initially with palpitations was like whole body was twitching, then turned to just little here and there but has been every day since then. At night one arm or both will go to sleep. Palpitations have resolved but these symptoms remain. Has kept me from sleeping well. Symptoms get worse around my period.

MRI today came back with normal results. Neurologist expected it would, but glad to have confirmation.

From the initial er visit my WBC was elevated around 12. And has hovered around there at each check up since. My pcp now suggesting hematology referral. Have been losing some more hair than normal past month or so too. But no pain and energy is generally ok.

Sound familiar to anyone.

Been so many guesses, post-Covid? Unknown cancer? Auto-immune? Allergy? Etc etc.

Working in healthcare sometimes has its disadvantages because you imagine yourself in every scenario you have seen. But my health anxiety is getting better with mindfulness.

Thanks

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neveragainvaccines | @neveragainvaccines | Oct 18 10:49am
In reply to @celia16 "I have no idea what your cause is, but I’ll just share what happened with me...." + (show)
@celia16

I have no idea what your cause is, but I’ll just share what happened with me.

Last year, I saw my first neurologist. Could you discuss a trial medication with your PC of a med to calm down the nerves? After my first neurologist, the tests were normal, but I had experienced extreme body wide fasciculations that could not be explained. He prescribed me one bottle of Clonazepam (small dose) to take as needed. No refills, as this med isn’t usually recommended long term. I try to avoid any medication that isn’t mandatory, so I was very judicious in my use of the med. I found it helped me relax and stopped the twitching. So, while I can’t be certain of the cause of my twitching, it responds to me relaxing. After that, the fasciculations left and now only return occasionally. They are random and intermittent. I now am able to tolerate them better and they leave on their own without medication. Oh, I also attend talk therapy and that helps.

Jump to this post

I had the same thing after what I consider long covid (along with other symptoms) Did see neuro and had all muscle tests and blood work,all normal. They have eased up a bit. A university of Alberta researcher recently have discovered low taurine levels with long covid cases. Interestingly enough I read on another site how this woman’s benign fasciculations have improved immensely with taurine. ( do your own DD) neuro also gave me clonazapam..an addictive drug. Good luck. They are bothersome.

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