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Anyone with MGUS, do you have joint pain?

Blood Cancers & Disorders | Last Active: Oct 23 8:21am | Replies (39)
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@angiew

I am so glad I looked this up on here, knowing I'm not crazy and my bones hurt! My Hemo claims there is no symptoms to MGUS. I don't agree, for years I have dealt with random bone pain I used to be able to ignore it, now it's getting worse I'm having to treat it with over-the-counter pain meds. Mainly it's my upper body shoulders, ribs upper back and arms. It's not joint pain and it's not muscle pain, it's pain in the middle of my bones to the point of wanting to just lay down and not move. Unfortunately, I am a single house income and have to work 2 jobs. I am able to, but some days are miserable, like today.

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pcb | @pcb | Oct 18 9:17am

Thanks for mentioning the bone pain that seems to radiate out from the middle of the bone. None of my doctors has sufficiently explained it. For me it’s worse at night. I take a couple of Motrin pm and get a bit of relief.
Hang in there. Paola

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Patty, Volunteer Mentor | @pmm | Oct 23 8:21am

@angiew
Ouch! I’m so sorry.
Is your hematologist/oncologist doing any scans of your bone structure? Mine does annual scans to look for any bone lesions. Fortunately I have none so far. I have some neuropathy in my feet and pain associated with that. I have intermittent pain in my shinbones which is here then gone until next time.
An orthopedist prescribed gabapentin which I did not find helpful and caused tingling in my fingertips. Otherwise Tylenol is minimally helpful.
Is your doc doing scans? If not, can you have a discussion about his or her reasoning?

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