← Return to Anyone with MGUS, do you have joint pain?

Discussion

Anyone with MGUS, do you have joint pain?

Blood Cancers & Disorders | Last Active: Dec 29, 2024 | Replies (42)
Comment receiving replies
@angiew

I am so glad I looked this up on here, knowing I'm not crazy and my bones hurt! My Hemo claims there is no symptoms to MGUS. I don't agree, for years I have dealt with random bone pain I used to be able to ignore it, now it's getting worse I'm having to treat it with over-the-counter pain meds. Mainly it's my upper body shoulders, ribs upper back and arms. It's not joint pain and it's not muscle pain, it's pain in the middle of my bones to the point of wanting to just lay down and not move. Unfortunately, I am a single house income and have to work 2 jobs. I am able to, but some days are miserable, like today.

Jump to this post

Replies to "I am so glad I looked this up on here, knowing I'm not crazy and my..."
pcb | @pcb | Oct 18, 2024

Thanks for mentioning the bone pain that seems to radiate out from the middle of the bone. None of my doctors has sufficiently explained it. For me it’s worse at night. I take a couple of Motrin pm and get a bit of relief.
Hang in there. Paola

VIEW AND REPLY
Patty, Volunteer Mentor | @pmm | Oct 23, 2024

@angiew
Ouch! I’m so sorry.
Is your hematologist/oncologist doing any scans of your bone structure? Mine does annual scans to look for any bone lesions. Fortunately I have none so far. I have some neuropathy in my feet and pain associated with that. I have intermittent pain in my shinbones which is here then gone until next time.
An orthopedist prescribed gabapentin which I did not find helpful and caused tingling in my fingertips. Otherwise Tylenol is minimally helpful.
Is your doc doing scans? If not, can you have a discussion about his or her reasoning?

VIEW AND REPLY
sunsetchris | @sunsetchris | Dec 29, 2024

Fortunately I am retired . I feel I need to know so much more about MGUS. I have just developed elbow pain. No injury that I am aware of. Could that be related to MGUS?

VIEW AND REPLY
sunsetchris | @sunsetchris | Dec 29, 2024

I have been having elbow pain for at least two weeks. No injury to account for it. Could this be MGUS related? I am lucky as I am retired but have a disabled spouse. UGH. Married for 59 years so I am lucky as I do get help for him through the VA. But no help for me. Elbow pain is bothersome.

VIEW AND REPLY