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Is there anything to help stop or slow progression of MGUS?
Blood Cancers & Disorders | Last Active: Nov 28 8:25am | Replies (85)Comment receiving replies
Yes, I was told the same thing nothing can be done about it. I'm what they call obesity and I have fatty liver disease but if I lose weight it will help out a lot. I don't know how I feel about this because If I lose weight which I want to do I don't believe it will help out the MGUS. I'm new to it and also why I'm here . I wanted to see what everyone is doing with the MGUS? I just went (Friday Oct 11th) for blood work to be done every 6 months now but Im worried because to me the levels are high and they go up and down . I hurt all the time but the Dr says its not MGUS I get worried about it I'm tried all the time and very little I know about it. I don't if everyone else has this or not and maybe it can be something else but I just had a physical and blood work Dr runs a full panel of blood work and it shows everything is good. My thyroid is low but now other tests show nothing to worry about My Igg is 2,202 which is high my Kappa Flc is 4.26 which is high and my Kappa/Lambda Flc is 2.82 which is high my total protein is 9.4 which is high and my IgG in April was 1,861 meaning it has went way up
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I was diagnosed with MGUS about 2 1/2 years ago and have now progressed to Smouldering Myeloma. I joined a medical study out of MSK called a nutrivention study. Basically, they are looking to see if they can stop the progression of MGUS and Smouldering Myeloma through using a whole-foods, plant-based diet. I started the diet at the beginning of August and by the end of the month my M-Spike and light-chain ratio had dropped by more than half. I am now almost 3 months in and will have new labs drawn next week. I can't wait to see if they have dropped even further. I have also had a big drop in my inflammation which has helped my energy levels and lost 23+ lbs as of this morning. I feel like a new person. My husband is doing it with me and his cholesterol has dropped from borderline to perfect levels and he has lost 15 lbs.
Starting the diet wasn't as tough as we thought it would be. It's the elimination of dairy that is the hardest for us. But we have done a lot of research, gathered some fun recipes, and look at it as an adventure. We are learning to cook without oils, and we use mostly mushrooms and beans instead of tofu or "vegan meats." I forgot to mention that I limit my "added sugars" to less than 5 grams per day, and some days have no added sugars. Limiting the sugars is very important because cancer often uses them as "food" to grow.
I will also tell you that while my "study hematologist" and endocrinologist were thrilled with my results in such a short time, my regular hematologist was not. Earlier this week was the first time he saw my study results. He actually seemed a bit annoyed that I was going this route and feeling great. He kept asking if I was hurting anywhere and downplayed my test results even though they were there in black in white. I was very disappointed in him not acknowledging that I was doing better without any medical intervention.
So, to answer the question of both you and the OP... YES! There is something you can do. You will need to set your mind to it, but it is so much better than waiting and doing nothing, and then taking harsh drugs in a battle that you could possibly have avoided. I wish you well whatever you choose to do. Feel free to reach out privately if you want more information.