1. < Pancreatic Cancer

Need help on this biopsy report and advice.

Posted by di341 @di341, Oct 10 3:12pm

Thank you for taking the time to look at this biopsy report and share your wisdom and experience!

My friend is in her 30’s. She was hospitalized with swelling due to what turned out to be multiple blood clots and the DX of Leiden V Factor. With the extensive imaging done, a “tumor” on her pancreas was discovered. A fine needle biopsy was done and we really need help with the interpretation. The oncologist she was sent to told her to come back in three months for another scan.

Is this reasonable if they are not sure what it is? Help! She is very young and we’d hate to make an irreversible and/or fatal mistake by waiting.

So grateful for any and all advice.

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montyd | @montyd | Oct 13 12:01pm

I would strongly suggest you to go to a Pancreatic Cancer Center of Excellence as they deal with great volume of cases and they probably have seen your situation.

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di341 | @di341 | Oct 16 12:57am
In reply to @stageivsurvivor "The findings from the initial testing by EUS-FNA is suspicion of the slower growing, less aggressive..." + (show)
@stageivsurvivor

The findings from the initial testing by EUS-FNA is suspicion of the slower growing, less aggressive pancreatic neuroendocrine tumor (PNET) based only on microscopic examination of the cellular morphology. To make a definitive diagnosis requires immunohistochemical (IHC) staining to determine what clusters of proteins are on the surface of the neoplasm. Each cell type has unique combinations of staining patters and the interpretation of which stains are positive and negative on a cell is how the definitive cell type is made. The report noted the biopsy material obtained was insufficient to use for the IHC and will need to be repeated.

For diagnosing diseases of the pancreas, it is best done at a high-volume center with a Hepatobiliary department and pancreas program. The patient should consider going to an NCI designated center of excellence or a National Neuroendocrine Foundation recommended comprehensive cancer center. These medical centers have a higher level of expertise and skills in doing an EUS, making a diagnosis and determining the most appropriate treatment.

CENTERS OF EXCELLENCE
https://www.cancer.gov/research/infrastructure/cancer-centers/find
https://pancreasfoundation.org/patient-resources/npf-centers-of-excellence/
https://netrf.org/

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This is so very informative and helpful! So grateful for your gracious sharing of knowledge.

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di341 | @di341 | Oct 16 1:01am

I am overwhelmed by the kindness of strangers. I can’t thank you ALL, enough for taking time to reach out, share and advise.

I will share everything with my young friend. I will let you all know what the next leg of this journey looks like when we know more.

Di

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1 reply
hakanb | @hakanb | Oct 16 10:23am
In reply to @di341 "I am overwhelmed by the kindness of strangers. I can’t thank you ALL, enough for taking..." + (show)
@di341

I am overwhelmed by the kindness of strangers. I can’t thank you ALL, enough for taking time to reach out, share and advise.

I will share everything with my young friend. I will let you all know what the next leg of this journey looks like when we know more.

Di

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Don't wait, seek treatment immediately or it will metastasize. Early diagnosis is important

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