Any tips for LC dizziness?

I am going to follow this closely. I live in a small Indiana town with few options for treatment and my dizziness has not changed for 4 years. I got COVID in Oct. 2020 and haven’t been able to walk much since then. I have gone to every doctor I can think of with no change. So, please post any new info you get. Thank you!!!

So sorry to hear about your dizziness. I can understand because I have that same issue. I've tried going to a Dizzy and Balance Center here in Minneapolis. After testing they prescribed several sessions of PT and then OT thinking it was vestibular dysfunction. none of it has really worked yet. It comes on mostly if I've been too active and am tired. Getting up from a chair sometimes creates an episode but not always.My PCP prescribed Mitodrine which didn't help the dizziness and raised my BP to 150 so I discontinued it. I am in the Mayo Clinic LC program in Rochester MN. Trying to not do too much has been enormously challenging.

Allergies are bad this year - a mask might cut down the outside allergans.
Or, an allergy pill before you go out for an extended period.
Stay extra hydrated.

Good luck!

Thanks, all. So sorry there seems to be no real help for our particular issue. I also have insomnia, poor sleep, and weird dreams. I wake up about every 2-3 hours. I'm exhausted!

There is a huge range of ‘dizziness’. I have found subtle differences in how it feels: from finding you are holding onto furniture in the house or weirdly using your toes to hold onto the floor ( noticeable in the shower) , sometimes it’s like you are on a rough sea, other times I have a real feel of spinning head over heals,. With my present dysautonomia I have completely blacked out. A tilt test table perhaps might diagnose what is happening with ‘dizziness’,,,I’d keep a daily diary recording when it comes on, how it feels, and for how long, and ideally record your HR/ oxygen levels with simple oximeter, and BP/HR….to narrow down one or more likely causes.

Will do, for sure. Sorry you have it so bad. I can't even imagine. Does meditation help at all? I rely on Insight Timer, a free website/app with probably thousands of meditations...you have to hunt arounf for the teachers/guides you click with. If you're interested, I can share the names of some I particularly like. If meditation doesn't solve the problem, at least it helps calm me down. And who knows? Maybe it does have some cumulative curative effect on the nervous system!
https://insighttimer.com/

Thanks...I have a different and not so severe issue -- I fainted during my first Covid but not since then. Since then, it's dizziness, not vertigo -- I'm not clinging to the walls. I passed the tilt table tests so it's not ear crystals, and the Epley maneuvers won't work. Many variations on this unfortunate syndrome!

I have read all of your comments regarding dizziness with LC. I caught Covid in December of 2022 and lost my taste and smell, along with feeling like I’m on a boat, dizziness. I found out through a blood test that I have Hashimoto’s and hypothyroidism, for which I now am taking 100 mcg of Synthroid. Since being on this medication, I do feel better, but I also gave up eating gluten, dairy and soy. I never knew I had either disease, but being on the Synthroid and not eating those 3 things has really helped me. Covid has done a lot of damage that we don’t even know about yet, but it’s possible your Thyroid was affected by Covid. I would suggest getting this simple blood test, it could really help the way you’re all feeling. I still don’t have my taste or smell back, but the dizziness is subsiding. I wish you all well!

Glad you found at least a partial answer...will take your advice and ask my doc. Thanks.

I have an appointment for next week to also request a blood test for the various symptoms including dizziness. I wonder if covid-19 and its variants has activated certain genes to the on mode for these illnesses, whereas previously these genes were there but off.