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Hi Karla,
Do you have and tingling feeling , numbness and pain in your legs from ET? I’m not sure if it’s from ET or a separate issue. I’m also on aspirin, iron , along with the HU. How high were your platelets?
Replies to "Hi Karla, Do you have and tingling feeling , numbness and pain in your legs from..."
Hi Karla. Yes, I have tingling in my feet and some numbness. It is very bothersome when I am trying to go to sleep. I take two 500 hydroxyurea a day and twice a week I take three 500 hydroxyurea, and of course a daily 81 milligram aspirin. my platelets went up approximately two months ago. When this happened my doctor put me on three hydroxyurea twice a week. My platelets came down to 421 my last lab test. If my platelets stay down, I am hoping he will take me off of the three twice a week. I feel the tingling and numbness in my feet is due to the hydroxyurea.
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Hi! I don't have the tingling that you describe. My feet are still one good thing left on my body. Have you been checked for neuropathy? Also, have your B12 levels checked. I take a cherry flavored B12 sublingual for low B12 and it gives me more energy too.
Take care!