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Have energy...then CRASH!

Posted by catherinej @catherinej, Oct 14 5:14pm

So, I thought I was doing ok with PEM however after an emotional week ( good, but heavy therapy), family drama and upping my exercise I crashed Saturday (10 a.m. to 7 am) Sunday. Then Sunday 9 a.m. to 4 a.m. today. I exercised a little this morning and that is all I can do. I have headache, fatigue, sweating etc.
My question is had anyone experienced this? Thinking you are getting better then CRASH!
Thank you,
Catherine

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celia16 | @celia16 | Oct 14 6:49pm

That sounds really awful. I’m fortunate that fatigue has never been a LC symptom that I got. So far…

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dawg | @dawg | Oct 15 8:07am

You’re pretty much describing what I think most LC sufferers (w/ fatigue and PEM symptoms) go through, especially early on. It’s a vicious cycle. Feel a little better, have some extra energy, then push yourself only to crash. Feels like one step forward, two steps back. You’re definitely not alone. Hang in there.

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missbeverly | @missbeverly | Oct 15 8:12am

Yes, that is me also, I started a new vitamin B8 Inositol. It gave me more energy and no chronic fatigue. It's working for me. https://www.webmd.com/vitamins/ai/ingredientmono-299/inositol

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celia16 | @celia16 | Oct 15 8:39pm

Have you checked your vitamin levels?

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britt1b | @britt1b | Oct 16 9:18am

My first post to the group. Really frustrated with lack of help from any of the specialist seen over the past few months. All test results negative, but constantly battling head tingling/dull headache/tinnitus/occasional sharp jab on side of head and irregular heart rate. Seem to show improvement then CRASH followed by lightheadedness and balance issues.

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kellysmail2016 | @kellysmail2016 | Oct 16 8:01pm

Catherine. Please review literature on CRASHing. I am just getting up from 16 hours of sleep. After 13 yesterday and 15 the day before… and so on. It’s awful. PACEing is better but I still crash.

Shared files

Why LC can cause exhaustion, or post-exertional malaise, after exercise - Shots - Health News - NPR (Why-LC-can-cause-exhaustion-or-post-exertional-malaise-after-exercise-Shots-Health-News-NPR-3.pdf)

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mclelland1958 | @mclelland1958 | Oct 17 11:13am

Hi Catherine,
I am also new to LC. I was diagnosed 2 months ago. I seem to crash when I am
Having issues with anxiety/ stress. I know how frustrating it is to be in your situation. Honestly, I think the best thing you can do is rest a lot. I crashed today and I am resting for 30 minutes 3-4 times a day, drinking water with electrolytes, and avoid doing activities that can raise my heart rate over 100. I am suggesting to hold off on exercise until your PEM symptoms go away. When you decide you’re ready to exercise, go easy. I use a pacing monitor called Visible. It keeps you from over exerting yourself, but I feel like you really need to go with your gut. Feel fatigue, take it easy and don’t push through it. Rest. I am not as knowledgeable as most of us here. This is just
what works for me. I hope you feel better soon.

REPLY
1 reply
ericy210 | @ericy210 | Oct 17 8:35pm

Yes. It took me a while to track what’s going on and how I’m feeling. I have a “stress monitor” app on my Apple Watch that measures heart rate variance, one indicator of stress. It measures by hour, and as I later look at what meetings or stuff that happend at work, it’s usually liked to elevated stress. I try to be proactive and spend a few quiet minutes before such meetings. If it’s going to be a long meeting, I take an adderall that’s prescribed to help me focus through brain fog, especially if I’m low on energy. I’ve been managing down my caffeinated soda intake- that also crests a rash for me. “Pacing” seems the magic word

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1 reply
friedrich | @friedrich | Oct 18 8:49am
In reply to @mclelland1958 "Hi Catherine, I am also new to LC. I was diagnosed 2 months ago. I seem..." + (show)
@mclelland1958

Hi Catherine,
I am also new to LC. I was diagnosed 2 months ago. I seem to crash when I am
Having issues with anxiety/ stress. I know how frustrating it is to be in your situation. Honestly, I think the best thing you can do is rest a lot. I crashed today and I am resting for 30 minutes 3-4 times a day, drinking water with electrolytes, and avoid doing activities that can raise my heart rate over 100. I am suggesting to hold off on exercise until your PEM symptoms go away. When you decide you’re ready to exercise, go easy. I use a pacing monitor called Visible. It keeps you from over exerting yourself, but I feel like you really need to go with your gut. Feel fatigue, take it easy and don’t push through it. Rest. I am not as knowledgeable as most of us here. This is just
what works for me. I hope you feel better soon.

Jump to this post

Thank you for describing in detail your approach to managing Post-Exertional Malaise (PEM), including the Visible monitor.

REPLY
friedrich | @friedrich | Oct 18 8:51am
In reply to @ericy210 "Yes. It took me a while to track what’s going on and how I’m feeling. I..." + (show)
@ericy210

Yes. It took me a while to track what’s going on and how I’m feeling. I have a “stress monitor” app on my Apple Watch that measures heart rate variance, one indicator of stress. It measures by hour, and as I later look at what meetings or stuff that happend at work, it’s usually liked to elevated stress. I try to be proactive and spend a few quiet minutes before such meetings. If it’s going to be a long meeting, I take an adderall that’s prescribed to help me focus through brain fog, especially if I’m low on energy. I’ve been managing down my caffeinated soda intake- that also crests a rash for me. “Pacing” seems the magic word

Jump to this post

Thank you for describing in detail how you manage PEM, including the stress-monitor app on your Apple watch.

REPLY
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