Hi Vickie!
I noticed you also asking about the mutation Mecom rearrangement, which my husband had, along with deletion of chromosome 7.
Yes, I understand it is very rare, accounting for less than 2% of AML mutations diagnosed. And in the high risk category. So nice to meet you, but wish it was under better circumstances. Hope this helps you feel like you’ve got a “community” out here. It’s hard to hear the words “high risk” and “rare” when you are navigating a health crisis.

My husband stopped his Venetaclax and Azacitadine cycle (#3) about 4.5 weeks prior to starting his conditioning chemo, which was bufulsan and fludarabine. He received the conditioning chemo for 5 days, had two days of rest and then the cells transplant.

I certainly hope this next cycle of treatment is effective in bringing your blasts down and your neutrophils up! Thrilled to hear you have a donor too!
Lori is right, you are receiving world class treatment and even though AML can be tricky to treat, Mayo has the experience and is plugged in to the latest studies and clinical trials that inform them of their options for treatment to get you into remission and then a chance for being cured with a stem cell transplant!

Reach out if you have any other questions or just need an ear!

Mary