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I am newly diagnosed with AML. with the inv(3) mutation,

Posted by marlysmae @marlysmae, Jun 28 5:47pm

I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since morphed into AML with inv(3). Has anyone else experienced this mutation? I am receiving excellent care at Rochester Mayo. Spent a week in the Methodist Hospital, and now receiving outpatient treatment for a month. Would be interested to know if anyone has undergone a BMT with this mutation?

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Mentor
Lori, Volunteer Mentor | @loribmt | Oct 14 8:34am
In reply to @rhskin911 "Hi there, I’m on here just to try to get some questions answered for my father...." + (show)
@rhskin911

Hi there, I’m on here just to try to get some questions answered for my father. He was just diagnosed with AML and to be honest, I’m not very confident in the dr. He missed this diagnosis and didn’t think he needed a bone marrow biopsy. Long story short, he was hospitalized and very ill and the hospitalist ordered the biopsy and we got the results this past Friday. They want to do chemo both oral and IV. I have requested an appt to have another Dr look at him. We’re waiting for the mutation test yet. What was process for you when you started treatment and how did they determine to do BMT for you? My dad is 83.

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Hi @rhskin911, Just wanted to check in with you to see how your dad is doing with his AML diagnosis. By now he should have gone through a couple rounds of treatment. Has there been any positive changes to his health?

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