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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Oct 29 9:41am | Replies (592)

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@vickyvanvliet

Well, I have bilateral pain. It used to be more on one side really bad and the other side kind of bad so the first time I had ablation I did it on the bad side and I was blown away by the results. I think it lasted for a year and a half but when the pain came back, it was maybe 1/8 of what the original pain was. So then I got bilateral to both pudendal nerves on both sides. I love that because that’s like 100% relief that worked I think for a couple years and now I have some pain coming back nothing like the old days but I’m going to go in for that in a few months. I would really make sure that they are going to sedate you and have that camera so they can see the nerve and everything really up close because it does take precision. They basically have to burn the nerve. if your surgeon hasn’t done it before, I think I could probably get the notes on how it was effectively done for me and somehow send it to you because the doctors really need to learn this! I mean my gosh what is it? $1500 to have it done? That’s nothing compared to the goose chase of trying to find solutions and for years, I was on narcotics, which was terrible. I don’t take any pain medicine now anyway let me know if your doctor has experienced with this or if you would like any of the notes. My doctor took beautiful notes on what degree and direction he did the nerve and from what angle and he left them in my files. The new doctor can follow it exactly hoping to get the exact outcome. A lot of nerve he had retiring! But you know he had stories of like one woman that had a terrible horrible tickling sensation that would drive her nuts day in and day out and he treated her with radio frequency ablation. She couldn’t even work before he treated her. It’s very effective. I also learned over the years that different fabrics, especially scratchy ones would set it off and almost everything has to be a thin, smooth stretchy nylon type of fabric. I learned different positions. I simply could not sit in for long. It’s a bunch of things you learn along the way, but when they disable that nerve, it’s amazing relief.

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Replies to "Well, I have bilateral pain. It used to be more on one side really bad and..."

How did they determine that it was this pudental thing. I've had ablations on my L5-S1 nerves, which never really helped. Did it show up on MRI? Appreciate any info and help you can give me.