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Excellent news that you consulted at the Mayo Clinic! That's a great plan for someone planning a family in the future. Did they check for Jak2 and your allele burden? I've been taking baby aspirin since my 30s for sticky blood. I developed Hashimotos after my 3rd child was born and the endocrinologist picked up on the sticky blood. That was 37 years ago and my diagnosis of ET came just last year at age 69. I'm doing great on 500 mg of HU, 4x a week, daily baby aspirin, and daily iron. Have they done an iron panel on you? I used to lose a lot of blood (and had big clots) during my periods. This is now thought to be connected to blood issues. We can live a long time with this chronic disease and have families. Live a healthy lifestyle and you'll do great! Yes, it's called blood cancer as of 2013, but it's not tumor-based, but if monitored it can be managed. The only reason I take HU is that I am over 60 and at higher risk for thrombotic events. Wishing you well in this new journey.
Karla
Replies to "Excellent news that you consulted at the Mayo Clinic! That's a great plan for someone planning..."
Hi Karla,
Do you have and tingling feeling , numbness and pain in your legs from ET? I’m not sure if it’s from ET or a separate issue. I’m also on aspirin, iron , along with the HU. How high were your platelets?
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Yes, heavy periods and clots for many years. Also a history of miscarriages. (Docs always assumed it was endometriosis, though that was never tested.) There seems to be a correlation, but actual cause-and-effect has never been established. But I hear this so much from other women that I hope researchers take it up. Especially since ET affects women by a large margin over men.