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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Oct 17 5:52am | Replies (571)

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@cneubauer

Good morning, I am new to the group and I have spent the last hour or so reading all of my fellow group members posts. I want to start off by saying that I appreciate all of you sharing your experiences, it has given me a wealth of information regarding peripherical neuropathy. I am currently 71 yrs. old. My story began approximately 10 yrs ago, on vacation after a busy day on my feet on tours, I had trouble putting on my shoes to wear for dinner. The following year I experienced several falls, one resulting in a concussion, followed by several more falls. My Primary Physician referred me to a neurologist and an otolaryngologist to seek out issues that might be contributing to the falls. I was diagnosed through testing by the neurologist through nerve testing and blood tests with peripherical neuropathy in my lower legs and feet. The otolaryngologist discovered and treated an imbalance in middle ear due to the falls which was corrected. I was began a regimen of supplements. My major problem is my feet feeling swollen and cold all the time. I am working with my imbalance issues, through Chair Yoga strengthening my leg muscles and standing with holding chair balance exercises. I feel breathless at times, it does limit my ability to walk long distances. We still travel, but I limit the excursions I take. Use OTC Biofreeze Gel for discomfort, socks all the time, but at times, my feet feel too cramped and sore, so go without the socks for a bit. Pressure stockings did not help. I am discouraged that my Neurologist has nothing to offer when I see him bi-yearly, just keep doing what I am doing is the message. I do pedicures once a month, and a massage quarterly to keep my skin hydrated and the muscles stimulated. I hope sharing my experience has helped anyone.

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Replies to "Good morning, I am new to the group and I have spent the last hour or..."

Welcome @cneubauer, Thanks for sharing your experience and what's helped you. Neuropathy is definitely a journey with many different side trips for a lot of us. I'm also working on keeping my leg strength up with daily exercises. Most of mine is on an exercise bike since my walking is not real great. I do have the senior shuffle down really well though🙂. If you haven't already explored the Foundation for Peripheral Neuropathy website, it's a boon for learning more about neuropathy and what has helped others improve the quality of their life - https://www.foundationforpn.org/living-well/.

Do you have swelling in your feet or do they just feel like they are swollen along with being cold?