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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@eileen11108

I have been on low dose HU since 2022 for ET JAK2. I am currently taking 500 mg four days a week. I have lately been noticing leg aches but not shooting pains, I feel the best when I take 500 mg three days a week. The extra pill was requested by my hematologist to get my platelets to 400 (were about 520).
Best wishes, Eileen

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Replies to "I have been on low dose HU since 2022 for ET JAK2. I am currently taking..."
winmil99 | @winmil99 | Oct 13 7:39am

my plts run between450-650 my hematologist said not to use HU until they hit 1000 just on asa I was diagnosed 1.5 yr ago

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