Evenity Advice?

Posted by maieva @maieva, Sep 26 11:14am

I am 66 years old and have been on Reclast for two years with some improvement in my scores, although the second year my spine score went down. My endocrinologist at Mayo Clinic discussed Evenity and Tymlos and I think I am going to try Evenity since it is one year and convenient to go once a month to the clinic to get the injections. I had concerns about the black box warnings regarding heart attack and stroke, but she reassured me that she has not heard of anyone experiencing this. I also have an appointment with my cardiologist to see what he says before I start. I don’t know what else to do and yes, I’m very nervous about taking this drug, but I know it’s supposed to give me big gains in my spine where I need it the most. Any additional advice?

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awfultruth | @awfultruth | Oct 12 8:03pm

In reply to @hopefullibrarian "awfultruth--This is awesome! Thank you so much. I have to bookmark that site." + (show)

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mancos | @mancos | Oct 13 12:50am

In reply to @windyshores "Wow that is a high dose of Vitamin D3 @manco! What is your current D3 level?..." + (show)

I thought it was very high, too. Last Vit D-Hydroxy on 8/5/24 was 35 ng/mL (normal range), but calcium was 7.8 mg/dL on 8/5/24 (low). Last calcium on 10/4/24 was a bit higher at 8.1 mg/dL, so calcium level does seem to be improving. I had been taking 1,500 mg of liquid calcium citrate when it was 7.8, now with the increased 1,800 mg of calcium it’s up to 8.1 (getting closer).
Doctors recommend Evenity for me. I have an upcoming appointment & will ask them again about Tymlos & Forteo.
Thanks for your feedback & reply, I appreciate it!

06111945cc | @06111945cc | Oct 13 1:24am

In reply to @windyshores "@06111945cc if I ever got to -1.5 or -1.0 I would not take meds. As I..." + (show)

Dear windyshores,

I agree.

On the other hand. I’m fearful .

You make me question whether or not it’s true that we can’t maintain bones naturally.

You suggest that we can maintain bones naturally. How do we do that?

What is your proposed plan?

windyshores | @windyshores | Oct 13 4:25am

In reply to @06111945cc "Dear windyshores, I agree. On the other hand. I’m fearful . You make me question whether..." + (show)

Personally I believe we will continue to lose bone after menopause but we can slow that loss with diet, exercise, supplements and generally reducing inflammation. If we are not in danger of fracture and have scores that are in a better range. Keith McCormick first wrote "A Holistic Approach to Osteoporosis," and his more recent book "Great Bones" is encyclopedic. Margaret Martin at melioguide.com is helpful on exercise. Talk to your doctor but at -1.5 or -1.0 I would not medicate but monitor closely. I believe many docs are not medicating osteopenia these days.

windyshores | @windyshores | Oct 13 4:29am

In reply to @mancos "I thought it was very high, too. Last Vit D-Hydroxy on 8/5/24 was 35 ng/mL (normal..." + (show)

@mancos one other thing to think about: I read that Tymlos "eats D3" and I kept mine stable at 50 or so by upping my intake to 3,000 units/day. When I stopped Tymlos my level started to rise so I backed down to 1,000-2,000 units depending on the season. I don't wear sun screen!

I cannot believe you take 15,000 units and your level is 35. Do you take a liquid, or gummy, or pill?

gravity3 | @gravity3 | Oct 13 4:56am

In reply to @windyshores "@mancos one other thing to think about: I read that Tymlos "eats D3" and I kept..." + (show)

Would taking a d3 supplement that contains K2 make a difference or at least a separate k2

kristie2 | @kristie2 | Oct 13 8:48am

In reply to @gravity3 "I just finished Evenity. My endocrinologist wanted me to wait 5 mo. But I was concerned...." + (show)

I would be very concerned waiting this long. I only skipped a month and 10 days until I started Prolia. I would never wait 6 months that’s just my opinion from what I have read .

mancos | @mancos | Oct 13 4:38pm

In reply to @windyshores "@mancos one other thing to think about: I read that Tymlos "eats D3" and I kept..." + (show)

I am taking a liquid Vit D3 made by Barleen’s. I take 3 doses of 5,000 IU 3 times a day (15,000 IU total). Prior to this I had taken both pills & gummies. Because of my malabsorption issues from my bariatric surgery, they wanted me to take it in liquid form.