← Return to Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

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Profile picture for jam5 @jam5

What minimal side effects have you experienced?

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Replies to "What minimal side effects have you experienced?"

I am fatigued and have limited internal drive. My extremities often are cold.
Periodically, I have to deal with constipation.

I still am anemic and have fatigue with little internal drive or energy although the level of my fatigue and internal drive have gotten slightly better. I need to be on the watch for periods of constipation which I treat with eating plums.

This past winter, I was hospitalized with a very stubborn case of pneumonia which took up reidence in both of my lungs as well as in my blood. My 'hematologist/oncologist team' informed me that a very rare side effect was that Zanurutinib (Brukinsa), they felt, was likely the crux of my pneumonia. I have no conclusive evidence either way.

@jam5

My apologies as I just saw this message. My minimal side effects are my fatigue, internal drive/energy, and being out of breath which have lessened considerably from my original diagnosis. I continue having periodic constipation as well as all of my extremities remain cold which eventually leads to my entire core being overtaken by this feeling of cold.