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Dacogen/Venclexta not working?

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (35)

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@loribmt

Welcome to Connect @stevefenton. Thank you for sharing your experience with Vidaza/Venetoclax for AML. Sounds like the combo brought your blast count down from the initial higher count.
You mentioned that you were diagnosed with MDS. Were you being treated for MDS and it morphed to AML?
Does your oncologist feel that the V/V will put you into remission or will you require a bone marrow translant?

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Replies to "Welcome to Connect @stevefenton. Thank you for sharing your experience with Vidaza/Venetoclax for AML. Sounds like..."

Lori, my MDS treatment was watch and wait from April 2022 from a local private oncologist. After reaching out to Moffett for a second opinion in April 2024, after becoming PLT TX dependent, their biopsy showed 15% blasts and five genetic mutations: AML. The V/V has put it into remission, but since after extensive research I opted to not do a BMT (too much risk and poor QOL for too little reward and limited CR), the V/V is currently my only option until it stops working.