Small intestine bacterial overgrowth

Posted by momochan @momochan, Apr 6, 2016

Hi, I have been suffering from small intestine bacterial overgrowth since last Jan. Have gone through a few courses of antibiotics, but whenever it finished, it came back and the stool got loose. I really am desperate, could anyone have suggestion? .

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Profile picture for emstorm @emstorm

I am being referred to UCLA for nutritional support. I saw that SIBO was one of the things on my list of problems. I have never heard of this. dr. has never mentioned it but when I looked it up, the description of symptoms are classic to my problems. Anyone have experience with SIBO/small intestines bacteria overgrowth?

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I have never had a test. I just saw this was listed on my medical records in the paperwork for my referral to UCLA. Doctors have never discussed it with me. They have said I have a sensitive gut but that is all.

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Profile picture for celia16 @celia16

How did you know you had SIBO initially?

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I just read it on my chart. It was never mentioned by anyone.

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Profile picture for emstorm @emstorm

So sorry. I admire your courage.

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Hi,
Thank you.
I never thought it was anything more than dumb stupidity not having enough brain cells to rub together and end it all!
Cheers

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Profile picture for gussie @gussie

I have had IBS-D for over 40 years. I have been gluten free for 13 years and it's helped but I still get days when I can't leave the house. Was tested for SIBO years ago and it came out that I made methane gas. Which is odd since methane gas is supposed to make you constipated. I have used the Fodmap diet to guide me. I stay away from gluten and dairy products but still have problems. I do feel better if I don't eat a lot at one meal.

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Hi,
I don't know which is easiest C or D, lurching from one to the other is usually a short live moment pleasure until the stark realisation the cycle starts again. For me SIBO is the side affect of other more sinister health issues that can't be treated or cured. As yet I haven't found a way of getting used to it or managing it.
Cheers

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Profile picture for emstorm @emstorm

I have never had a test. I just saw this was listed on my medical records in the paperwork for my referral to UCLA. Doctors have never discussed it with me. They have said I have a sensitive gut but that is all.

Jump to this post

Hi,
I only found out I had ANS by reading my ED discharge papers. Then I rushed to read my Gastorlogists notes and saw it confirmed this was what he is dealing with. That sent me into reasearch mode and the proverbial hit the fan. No way around it , no way out, stuck with it for the forseeable. All the pieces fell into place and the sysmptoms started making sence. Looking back at my health history and previously events that made no sence suddenly there was an understanding of why this has been happening to me. A huge relief, I was not imagining it and not going mad, now I sort of understand why when another symptom says hello. The big problem is 50% of my symptoms are random events which nobody can be sure the neuropathy is the cause. we all just suppose it is for lack of another reason.
Interestingly I tackled my Gastrologist about it last time we met and I could see the relief come over his face. I guess no one really likes to be the one to tell a person it's all doom and gloom ahead with a successful bout of death possibly thrown in for good measure.
Cheers

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Profile picture for cheyne @cheyne

Hi,
I only found out I had ANS by reading my ED discharge papers. Then I rushed to read my Gastorlogists notes and saw it confirmed this was what he is dealing with. That sent me into reasearch mode and the proverbial hit the fan. No way around it , no way out, stuck with it for the forseeable. All the pieces fell into place and the sysmptoms started making sence. Looking back at my health history and previously events that made no sence suddenly there was an understanding of why this has been happening to me. A huge relief, I was not imagining it and not going mad, now I sort of understand why when another symptom says hello. The big problem is 50% of my symptoms are random events which nobody can be sure the neuropathy is the cause. we all just suppose it is for lack of another reason.
Interestingly I tackled my Gastrologist about it last time we met and I could see the relief come over his face. I guess no one really likes to be the one to tell a person it's all doom and gloom ahead with a successful bout of death possibly thrown in for good measure.
Cheers

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I certainly understand. I have a condition called CVID or Common Variable Immunodepression. In otherwords my body doesn't make antibodies to fight viruses or bacteria so I give myself infusions of blood plasma to get other peoples antibodies in IgG gammaglobulin. Because of having primary immunodeficiency people like me have all sorts of weird things. Mine really effects my gut where we have bacteria.

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Profile picture for gussie @gussie

I certainly understand. I have a condition called CVID or Common Variable Immunodepression. In otherwords my body doesn't make antibodies to fight viruses or bacteria so I give myself infusions of blood plasma to get other peoples antibodies in IgG gammaglobulin. Because of having primary immunodeficiency people like me have all sorts of weird things. Mine really effects my gut where we have bacteria.

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Hi,
I don't think too many people understand just what the nerve systems do for us. Simply put they are the wiring between a keyboard and the motherboard. Without it or corrupted all manner of screwball things can happen, totally out of our control. When It gets bad it often becomes a permanent feature of our system. I struggled to remember how to speak last week. Fortunately for me a very short term computer glitch! But none the less it refocuses my attention to what a task I have to deal with.
I knew a friend who had to have monthly infusions to try to get the nerves working each month. He had no sensation in his limbs and was restricted from a lot of activities because of it, driving in particular where he could not determine how much pressure was required to accelerate or brake. At the time I paid it no heed, but in hindsight I realise just what hell it must have been for him.
Everybody thinks I crazy to want death but frankly when it gets bad that is the only solution if it doesn't happen through ANS. Thankfully I understand that keeping myself as busy as I can diverts the mind not allowing it time to contemplate the shortcomings of my disease.
This is not a disease for the faint hearted but surely it is one for my enemies! If I had any.
Cheers

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Profile picture for emstorm @emstorm

I am being referred to UCLA for nutritional support. I saw that SIBO was one of the things on my list of problems. I have never heard of this. dr. has never mentioned it but when I looked it up, the description of symptoms are classic to my problems. Anyone have experience with SIBO/small intestines bacteria overgrowth?

Jump to this post

Your writings touch my heart. I, too struggle every day and have done so for many years. The wolves of depression lurk all around me. I have to keep my fire burning or they will attack. Staying busy, counting my blessings, competitive exercise, quilting, scrubbing my floor, cleaning the toilet, loving my dogs. I count my blessings.

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Profile picture for emstorm @emstorm

I am being referred to UCLA for nutritional support. I saw that SIBO was one of the things on my list of problems. I have never heard of this. dr. has never mentioned it but when I looked it up, the description of symptoms are classic to my problems. Anyone have experience with SIBO/small intestines bacteria overgrowth?

Jump to this post

Hi,
If I can lighten anybodies load why not. A problem shared can make us feel like one of the gang and not alone.
I hate being asked "hows my day" frankly I'm starting to forget what a good day felt like and don't have the time or patience to discuss it. Well actually I do have the time, the person asking likely won't have the time to listen, so simply put crap has become the standard answer. I keep being told crap happens but I don't think they realise I wish it would with this disease! Anyway it would and does mean very little to anyone not invested in my life.
You get to the point of why bother I seem to be the only one concerned with what life is dealing me. Kind of out of sight, out of mind for the proffesionals. I'm noticing the hand eye coordination is bad today, matches the ability to spell. Started the day with bad test results so it will be a day of subdued activity waiting this one out, yet again.
I'm a cat person or more importantly he's a human person! The cat has rank over both of us and I figure I'm bottom of the totum pole in this house hold. I know my place, until my help is required, then I can shine.
Cheers

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Profile picture for janovr @janovr

My gastro doctor found that my pancreas was not functioning properly. I was nauseous and losing weight. As she explained, the food I was eating was literally passing through my digestive track or sitting there rotting. I was not getting any nutrients from the food I was eating, thus, weight loss and loose stools. She prescribed EnteraGam, VSL 3 probiotics. Plus I take Pertzye Capsules with every meal and snack( as my pancreas was not providing the enzymes my body needed to help digest the food and maintain the nutrients I needed from the food). I have been taking them a month and this is helping me to regain strength, not as nauseated and for the first time in a year.....I had not lost weight....had not gained any but she says that will come as my body adjusts. My PCP totally missed the dx of the non functioning pancreas. Hope this helps someone.

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Thank you - been suffering with diarrhea (explosive) for six months - treated for a parasitic infection for stool samples, however it never stopped. I eat healthy, but am now following the BRAT diet to see if I have any control. My PM is sending for a MRI with and without contrast of abdomen and sending me to another gastroenterologist for second opinion. My primary care asked if anyone took X-rays or MRI. The first GI doctor did a colonoscopy and said I looked fine. I have lost 30 lbs since February. I want a normal life back.

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