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Anyone go to a Mayo Clinic for neuropathy?

Neuropathy | Last Active: Mar 1 11:02am | Replies (78)

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@rwinney

Hi @lewin - to Laurie's @roch point, my Medicare plan was accepted at Mayo Clinic Florida. I certainly understand your frustration though. I learned things the hard way regarding insurance and began to make "insurance acceptance" one of my first questions. Noone wants wasted time. Typically a medical professional gives attention to insurance acceptance early on.

Sorry you had an unfortunate experience. I wouldn't give up on Mayo yet. Medicare open enrollment time is upon us. I actually switched my medicare insurance plan in order to be seen at Mayo and it was worth it.

Have you considered switching your Medicare insurance to one that Mayo does accept for the benefit of going there? Just a thought.

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Replies to "Hi @lewin - to Laurie's @roch point, my Medicare plan was accepted at Mayo Clinic Florida...."

Hi there, you ask about Mayo clinic. I was just there recently and I just called them up and talked to him on the phone about everything and then I did not need a doctor 's report for me to go there. But I did ask my doctor to send them one to get me in faster. That's what I was told to do so I don't know but I have Medicare plus blue and they accepted me. I have not got a bill yet and I was there just a couple weeks ago. Maybe 3 weeks for neuropathy. I had a doctor in the neurology department called Sarah berini. Wonderful doctor. Very educated. Even before they did any tests they set you up with an appointment but you have to wait. I waited maybe 4 months. Maybe a little longer to get in but it was well worth the experience. As far as my neuropathy goes I have small fiber neuropathy. Also they believe it to be genetic. They did all kinds of tests on me but unfortunately there's nothing they can do for the neuropathy other than gabapentin vitamin B12 cymbalta and I was told I could get some kind of a pain stimulator put in my back if I chose to do that. And of course they said maybe to get some ointments to put on My feet the neuropathy is just starting in my hands. They didn't tell me what to do about that. Other than that, there's not really anything you can do for it at this point in time. I'm sorry to tell you that it is a very painful process. Mine started years ago. Was just like water dripping down my leg or bugs crawling on my legs and then it started making my feet really hot like I was walking on very hot coals. Then a few years later my toes starting with the big toe started to get numb. So at this point in my life I have very numb feet. Both of them up my legs not quite to the knees. And I'm also having trouble now with my balance. I now have to use a walker but now I'm getting the legs are getting weak so I don't know where I go from here. If you have any other questions just let me know. I'll be happy to answer them for you if I can. Otherwise just make a call to Mayo clinic, it's the easiest setup. They'll tell you exactly step by step what you need to do. Then you'll need to call your insurance company and ask them if they accept your Medicare. I don't understand why they don't. Hopefully they do mine because that's what I have. But I also have Blue Cross Blue shield so I don't know if that made a difference. Good luck to you, carolyn