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Update on MALs situation
I finally got the ultrasounds yesterday to find out the severity of the MALs ( median arcuate ligament syndrome) it appears to be mild although it doesn't feel that way symptoms wise. Next step will be a phone appointment to determine if I am a good candidate for surgery. Once determined the date will be set, then it will be the 5 hour drive one way where I will have the surgery. After surgery I pray there are no complications considering I live in the "middle of nowhere" with no nearby adequate health care that has the knowledge to deal with MALs or possible afterwards complications.
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@katiero123
I think people with MALS can experience the pain differently.
The most typical pain I experienced after meals was very intense- mid to upper abdomen- and squeezing. The pain has been called intestinal angina- similar process as cardiac angina. There is not enough blood flow where and when it’s needed.
I had other symptoms too that were not so typical.
Loss of appetite, feeling full fast and nausea.
Are you being treated?
I’m scheduling surgery soon but am nervous about if they have to take the nerves out and if there can be consequences of that. (Like increase gi symptoms). I have all the symptoms you describe
@katiero123
After surgery I found the severe pain gone- great! The nausea, feeling full and losing appetite eventually went away too.
If you are nervous about the surgery and removing the nerves you should ask your surgeon.
Thanks for the info. Did you have the nerves out too or just the artery release?
Nerves removed.
Did you have any gi side effects from the nerves being removed ? (Sorry for all the questions )
There were no GI side effects. I have had GI problems for years before the surgery and many issues disappeared.
Are there reports about GI side effects?
I was told that taking away one part of the nerves is part of the autonomic nervous system so it can increase motility / cause spasms. I’m just trying to find out if anyone experienced that. I had a weird reaction to the nerve block. Less pain for the night then came back worse a couple days after.
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1 ReactionI feel lonely and afraid that surgery won’t help
Hi,
I'm new to this group.
Can someone please tell me where to start for an official diagnosis of MALS? As in which exact doctor and/or type of MRI (area/contrast/no contrast/CT scan, etc.)?
I was diagnosed with endometriosis (I was covered) and had laproscopy to remove it. I was left with pain in my lower-right side. Fast forward four painful years later and I was finally diagnosed with Pelvic Congestion Syndrome, Nutcracker Syndrome to be exact. During the surgical procedure to correct that a stent was placed in my left renal vein. I had relief for a short-lived time. I am now living in excruciating pain every single day. I have severe back pain when standing, stomach pain at all times, especially after eating. The pain also radiates down my thighs/legs, tingles, and sometimes I have pain that radiates down my right arm. I am looking for a 100% sure diagnoses and I am looking at MALS for some real hope of finally getting my life back.
Thank you so much for your help, consideration and time.