1. < Digestive Health

Update on MALs situation

Posted by cowtownusa @cowtownusa, Jan 5 2:07pm

I finally got the ultrasounds yesterday to find out the severity of the MALs ( median arcuate ligament syndrome) it appears to be mild although it doesn't feel that way symptoms wise. Next step will be a phone appointment to determine if I am a good candidate for surgery. Once determined the date will be set, then it will be the 5 hour drive one way where I will have the surgery. After surgery I pray there are no complications considering I live in the "middle of nowhere" with no nearby adequate health care that has the knowledge to deal with MALs or possible afterwards complications.

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Oct 11 12:45am
In reply to @katiero123 "I’m not sure if this is the right spot to post. Can someone tell me what..." + (show)
@katiero123

I’m not sure if this is the right spot to post. Can someone tell me what their mals pain was like? Mine is an intense gnawing in my upper mid abdomen sometimes squeezing too. After eating. My velocities are over 400 and I have the hook on Ct scan.

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@katiero123
I think people with MALS can experience the pain differently.
The most typical pain I experienced after meals was very intense- mid to upper abdomen- and squeezing. The pain has been called intestinal angina- similar process as cardiac angina. There is not enough blood flow where and when it’s needed.
I had other symptoms too that were not so typical.
Loss of appetite, feeling full fast and nausea.
Are you being treated?

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1 reply
katiero123 | @katiero123 | Oct 11 5:48am
In reply to @astaingegerdm "@katiero123 I think people with MALS can experience the pain differently. The most typical pain I..." + (show)
@astaingegerdm

@katiero123
I think people with MALS can experience the pain differently.
The most typical pain I experienced after meals was very intense- mid to upper abdomen- and squeezing. The pain has been called intestinal angina- similar process as cardiac angina. There is not enough blood flow where and when it’s needed.
I had other symptoms too that were not so typical.
Loss of appetite, feeling full fast and nausea.
Are you being treated?

Jump to this post

I’m scheduling surgery soon but am nervous about if they have to take the nerves out and if there can be consequences of that. (Like increase gi symptoms). I have all the symptoms you describe

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1 reply
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Oct 11 8:10am
In reply to @katiero123 "I’m scheduling surgery soon but am nervous about if they have to take the nerves out..." + (show)
@katiero123

I’m scheduling surgery soon but am nervous about if they have to take the nerves out and if there can be consequences of that. (Like increase gi symptoms). I have all the symptoms you describe

Jump to this post

@katiero123
After surgery I found the severe pain gone- great! The nausea, feeling full and losing appetite eventually went away too.
If you are nervous about the surgery and removing the nerves you should ask your surgeon.

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1 reply
katiero123 | @katiero123 | Oct 11 10:42am
In reply to @astaingegerdm "@katiero123 After surgery I found the severe pain gone- great! The nausea, feeling full and losing..." + (show)
@astaingegerdm

@katiero123
After surgery I found the severe pain gone- great! The nausea, feeling full and losing appetite eventually went away too.
If you are nervous about the surgery and removing the nerves you should ask your surgeon.

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Thanks for the info. Did you have the nerves out too or just the artery release?

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1 reply
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Oct 11 12:49pm
In reply to @katiero123 "Thanks for the info. Did you have the nerves out too or just the artery release?" + (show)
@katiero123

Thanks for the info. Did you have the nerves out too or just the artery release?

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Nerves removed.

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katiero123 | @katiero123 | Oct 11 3:48pm

Did you have any gi side effects from the nerves being removed ? (Sorry for all the questions )

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1 reply
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Oct 12 10:10am
In reply to @katiero123 "Did you have any gi side effects from the nerves being removed ? (Sorry for all..." + (show)
@katiero123

Did you have any gi side effects from the nerves being removed ? (Sorry for all the questions )

Jump to this post

There were no GI side effects. I have had GI problems for years before the surgery and many issues disappeared.
Are there reports about GI side effects?

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1 reply
katiero123 | @katiero123 | Oct 13 6:16am
In reply to @astaingegerdm "There were no GI side effects. I have had GI problems for years before the surgery..." + (show)
@astaingegerdm

There were no GI side effects. I have had GI problems for years before the surgery and many issues disappeared.
Are there reports about GI side effects?

Jump to this post

I was told that taking away one part of the nerves is part of the autonomic nervous system so it can increase motility / cause spasms. I’m just trying to find out if anyone experienced that. I had a weird reaction to the nerve block. Less pain for the night then came back worse a couple days after.

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katiero123 | @katiero123 | Oct 13 10:36am

I feel lonely and afraid that surgery won’t help

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