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White Brain Matter Disease - Treatment Options and Clinical Trials

Posted by zoetise @zoetise, Aug 10, 2021

Are there any treatments available other than keeping BP and Cholesterol under control? Are there any trials underway

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janabelleca | @janabelleca | Sep 30 5:42pm
In reply to @janabelleca "The scan was ordered by our family Dr. He has had bloodwork (his thyroid was low..." + (show)
@janabelleca

The scan was ordered by our family Dr. He has had bloodwork (his thyroid was low so they adjusted his meds) / urinalysis, ECG (resting heart rate was 42), a 24 Hour Holter Monitor (results not back), 2 memory tests scored 28 out of 30 on 1 and missed 1 answer on the other one. He has not seen a Neurologist yet, appointment in November.
What other testing should be done? or what other testing would be done at Mayo? And then what? What kinds of treatment options are there? Is this a hopeless thing or are there things to be done?

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Hi...just wondering if you have had a chance to look at my previous reply.

REPLY
janabelleca | @janabelleca | Oct 8 12:53pm
In reply to @janabelleca "The scan was ordered by our family Dr. He has had bloodwork (his thyroid was low..." + (show)
@janabelleca

The scan was ordered by our family Dr. He has had bloodwork (his thyroid was low so they adjusted his meds) / urinalysis, ECG (resting heart rate was 42), a 24 Hour Holter Monitor (results not back), 2 memory tests scored 28 out of 30 on 1 and missed 1 answer on the other one. He has not seen a Neurologist yet, appointment in November.
What other testing should be done? or what other testing would be done at Mayo? And then what? What kinds of treatment options are there? Is this a hopeless thing or are there things to be done?

Jump to this post

I am wondering if it would be possible to get a response to the additional information I have provided? Thank you!

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seapen | @seapen | Oct 10 9:24am

Is there a reason that a doctor would avoid giving a diagnosis of MS? 25 years ago a neurologist told me that I had MS. My symptom was depression and whatever he saw on a brain scan. When I told my PCP that, he rolled his eyes, and put me on an antidepressant. Recently I had a volumetric MRI which shows that I only have 10% white matter compared to others aged 72. My current doctor says I do not have MS, just keep taking the antidepressant. I have other symptoms that suggest MS - mild incontenance, arm and leg pain, mild cognitive impairment, and tingling in my face (chin, lips, nose). What symptoms are required to diagnose MS?

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Mentor
John, Volunteer Mentor | @johnbishop | Oct 10 10:17am
In reply to @seapen "Is there a reason that a doctor would avoid giving a diagnosis of MS? 25 years..." + (show)
@seapen

Is there a reason that a doctor would avoid giving a diagnosis of MS? 25 years ago a neurologist told me that I had MS. My symptom was depression and whatever he saw on a brain scan. When I told my PCP that, he rolled his eyes, and put me on an antidepressant. Recently I had a volumetric MRI which shows that I only have 10% white matter compared to others aged 72. My current doctor says I do not have MS, just keep taking the antidepressant. I have other symptoms that suggest MS - mild incontenance, arm and leg pain, mild cognitive impairment, and tingling in my face (chin, lips, nose). What symptoms are required to diagnose MS?

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@seapen, I wished I could give you a simple answer. I know you are worried about the diagnosis and probably what's next. From what I've read, there are no specific tests to diagnose multiple sclerosis. You might find this Mayo Clinic information on how MS is diagnosed helpful. They also have a list of symptoms.

-- Multiple sclerosis - Diagnosis & treatment:
https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/diagnosis-treatment/drc-20350274

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