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Essential thrombocythemia

Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)
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@kapow

I am a 69 yo female and I have ET with MPL mutation. I had an episode this spring with pericarditis that lasted on and off for about 3 weeks. Wondering if anyone else with ET has experienced this very painful inflammations of the pericardium, and if there is any relationship between the two?

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Replies to "I am a 69 yo female and I have ET with MPL mutation. I had an..."
janemc | @janemc | Oct 10 10:41am

Hello! I too have the MPL driver (aren't we lucky?).

And while I have no diagnosis, I too have pain and pressure around my heart. For me it's triggered by cold or coughing. I have had rising platelets for about 3 years, was diagnosed with ET and started on aspirin & HU a year ago, first experienced the pain last winter.

I reported it to my oncologist, who said he thought it had nothing to do with ET. I have some doubts about his breezy dismissal. I will ask my PCP at my upcoming annual wellness check.

Keeping my chest warmly covered helps.

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