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LDN dosing for fibromyalgia and ME/CFS

Posted by jmcaleavey @jmcaleavey, Jun 21, 2023

I am reading a lot about Low Dose Naltroxone (LDN) for Fibromyalgia and ME/CFS. A lot of reputable online information suggests starting at 0.5mg and slowly titrating up to 4.5mg to find a dose that best works for the patient. My local doctor wants me to just take 4.5mg but did say she isn't familiar with LDN being used for chronic pain/fatigue illnesses, only for weight loss which she doses at 25mg. I am not comfortable jumping straight to 4.5mg so I am looking for a Mayo Clinic source of information for low and slow titration. Is there a webpage available that explains this that I can share with her?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

emo | @emo | Apr 20 5:24pm
In reply to @mmmerrimac "I'm so glad my post was helpful. The POTS article caught my eye because my niece..." + (show)
@mmmerrimac

I'm so glad my post was helpful. The POTS article caught my eye because my niece has POTS. I'm sorry you have so much to battle with. I'm glad the LDN is helping with the fatigue, but it's too bad it's not giving you much relief with the pain.

I too wish there were larger studies. Some of the doctors I see for my various ailments have heard of LDN but have dismissed it because there isn't enough empirical evidence available. Maybe a groundswell of real-world evidence will eventually convince them. One can only hope.

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The funny/not funny thing is that now LDN is getting more attention for treatment of Long COVID (even POTS too). I’m glad, but sometimes I feel conflicted about it.

I agree… I understand why doctors would be hesitant but I wish they’d be more open to it, especially if they could at least do some research and see that the risks are so low. So even if they do prescribe it off-label and it doesn’t work, there’s very little to lose. As we all know, some of the stuff they prescribe is much riskier!

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alineechelard | @alineechelard | Oct 9 10:56am

I don’t know I would like to but,can get information from facebook group NOPE.

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