I have another appt with a neurologist in May 25 if you can believe that. I work with a great Osteopathic DR who is always pushing me to alternative treatments. i will probably do some IV treatments here shortly. I need a good day. Myers Cocktail is one and massive Vit C IV tx. She has also recommended Ozone I can't get my head around it yet. I have been fkn around with this for 8 years slowly getting worse.
I have another appt with a neurologist in May 25 if you can believe that. I work with a great Osteopathic DR who is always pushing me to alternative treatments. i will probably do some IV treatments here shortly. I need a good day. Myers Cocktail is one and massive Vit C IV tx. She has also recommended Ozone I can't get my head around it yet. I have been fkn around with this for 8 years slowly getting worse.
I can imagine every since I got sick it's been the gastrologist then neurologist physical therapist a rheumatologist so I completely understand how u feel and my fibromyalgia is so severe it's debilitating me
I went through Interferon and Ribavirin treatment 23 years ago. It made me sicker than hell but, I toughed it out. Upon finishing, I told my Gastroenterologist that something is not right. My head was in a fog. I suffered from pain everywhere, I just ache. Perpetual nausea that no one has an answer for. Chronic fatigue on an almost daily basis. I went from working 100hr. weeks, to not being capable of holding a regular job. Doctors have no answer. I’m now 67 years old, this treatment destroyed my life.
I went through Interferon and Ribavirin treatment 23 years ago. It made me sicker than hell but, I toughed it out. Upon finishing, I told my Gastroenterologist that something is not right. My head was in a fog. I suffered from pain everywhere, I just ache. Perpetual nausea that no one has an answer for. Chronic fatigue on an almost daily basis. I went from working 100hr. weeks, to not being capable of holding a regular job. Doctors have no answer. I’m now 67 years old, this treatment destroyed my life.
Concerned for you. May I ask what was your diagnosis that they used this treatment for on you? This has not bettered since the treatment? How sad for you.
Hi, it has been 22 years since I took the treatment for HEP C. I am grateful that I am HEP C free, but for years now I have been experiencing sever nerve pain in my legs, (where I did my injections) so much so it has altered my daily life. When the pain comes it is so bad I can not continue to walk and must sit. It wakes me up at night it is always there just times it flares up. I have thought that it was from the treatment but could never find any info on it and I asked doctors and they all say the same long term effects are unknown. Well I believe they are known and it is time for a study on just how it has effected people. I am in physical therapy now, trying to be positive but nothing has ever helped. Anyone else have these issues and if so how do you deal with it?
Hi, it has been 22 years since I took the treatment for HEP C. I am grateful that I am HEP C free, but for years now I have been experiencing sever nerve pain in my legs, (where I did my injections) so much so it has altered my daily life. When the pain comes it is so bad I can not continue to walk and must sit. It wakes me up at night it is always there just times it flares up. I have thought that it was from the treatment but could never find any info on it and I asked doctors and they all say the same long term effects are unknown. Well I believe they are known and it is time for a study on just how it has effected people. I am in physical therapy now, trying to be positive but nothing has ever helped. Anyone else have these issues and if so how do you deal with it?
I was treated in 2007. When I have a flare up, I can feel my injection sites. I am sorry you are going through this. I don’t have pain to your extent but I do get pain in my thighs at the injection sites.
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I have Chronic EBV and apparently Autonomic Dysfunction as well. My life is all but over it seems. Funny thing...I don't look sick 🙁
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2 ReactionsYes
No lie I'm in the same boat I'm sick every day I just don't look sick the treatments have destroyed my health
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2 ReactionsI have another appt with a neurologist in May 25 if you can believe that. I work with a great Osteopathic DR who is always pushing me to alternative treatments. i will probably do some IV treatments here shortly. I need a good day. Myers Cocktail is one and massive Vit C IV tx. She has also recommended Ozone I can't get my head around it yet. I have been fkn around with this for 8 years slowly getting worse.
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2 ReactionsI can imagine every since I got sick it's been the gastrologist then neurologist physical therapist a rheumatologist so I completely understand how u feel and my fibromyalgia is so severe it's debilitating me
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1 ReactionJust a friendly reminder. You really should private message any personal contact information so you keep your privacy.
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2 ReactionsI went through Interferon and Ribavirin treatment 23 years ago. It made me sicker than hell but, I toughed it out. Upon finishing, I told my Gastroenterologist that something is not right. My head was in a fog. I suffered from pain everywhere, I just ache. Perpetual nausea that no one has an answer for. Chronic fatigue on an almost daily basis. I went from working 100hr. weeks, to not being capable of holding a regular job. Doctors have no answer. I’m now 67 years old, this treatment destroyed my life.
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Like -
Helpful -
Hug
1 ReactionConcerned for you. May I ask what was your diagnosis that they used this treatment for on you? This has not bettered since the treatment? How sad for you.
Hi, it has been 22 years since I took the treatment for HEP C. I am grateful that I am HEP C free, but for years now I have been experiencing sever nerve pain in my legs, (where I did my injections) so much so it has altered my daily life. When the pain comes it is so bad I can not continue to walk and must sit. It wakes me up at night it is always there just times it flares up. I have thought that it was from the treatment but could never find any info on it and I asked doctors and they all say the same long term effects are unknown. Well I believe they are known and it is time for a study on just how it has effected people. I am in physical therapy now, trying to be positive but nothing has ever helped. Anyone else have these issues and if so how do you deal with it?
I was treated in 2007. When I have a flare up, I can feel my injection sites. I am sorry you are going through this. I don’t have pain to your extent but I do get pain in my thighs at the injection sites.