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Essential thrombocythemia

Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)

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@pumpkin1

Thank you, Lynnevb, I appreciate your response and especially, especially the Mayo Clinic protocol for treating ET. Unfortunately, the hematologist I have seen is relatively young and new at her job, and I think she was playing it safe when she wanted me to go on Hydrea immediately, even though my platelets were at 525. I think we each must consider where we are in life and what we want out of life before we make these difficult decisions. Again, because of my age (81 at time of diagnosis), I declined and have remained on the baby aspirin for the last 2-1/2 years.
Wishing you the best.

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Replies to "Thank you, Lynnevb, I appreciate your response and especially, especially the Mayo Clinic protocol for treating..."

pumpkin1, Just to be clear the protocol I was referring to was 10 years ago when I was 60 yo. Not sure what the experts would say about your platelet numbers and your age today in 2024. I am not trying to give you advice. I am saying that recommendations change over time as science gets better and the experts know more. I wish you all the best and hope you find a hematologist that can give you reassurance and hope. Everyone on this site will be here for you and support you. Sending love and understanding for wise choices.