Wife will have biopsy next week. Which doctor to see first?

Posted by frank1956 @frank1956, Sep 26 8:04am

My wife, 63, found a lump last month. After ultrasound, and diagnostic mammogram, they identified a palpable lump in right breast (13 x 11 x 11 mm). The radiologist doctor recommended a biopsy.
We have been trying to find out which type of doctor to see first if the unthinkable happens. We are looking into a UCLA breast center close by. They have Breast surgeon and Breast Medical Oncologist, but no Radiation Oncologist in this location.
Should we see a Breast surgeon first, or Breast Medical Oncologist?
Thank you.

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@colleenyoung

@frank1956, that's a lot of anguish and worry. Any results from your wife's biopsy?

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Well, the biopsy was done on Tuesday. It is now Friday night, still no calls. My wife called the Women's Diagnostic Center and her gynecologist. No one has any information where the pathologist's progress is.
I read in the book that they have to do more tests with the tissues for higher stage, that is maybe why it is taking longer? Wife will call them on Monday morning again.

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Five days after my biopsy I received a call and found out I had cancer. (The imaging before the biopsy was undecided whether the lesion was cancerous or not.) Eleven days after the biopsy I was able to get a copy of the pathologist report that fully detailed what I had. It did not mean the answer was more involved, it just took that long. I believe that part of the delay was because they needed all doctors involved to read the report and sign off on it before they released it to me.

I found this version of Understanding Your Pathology report to be very helpful. I took each little phrase from my pathology and looked it up on this report. I know some people would prefer to wait to let the doctor explain it to them, and that’s a good option, too. But, for me, I felt better having a little knowledge about the new terms they were sharing so I could ask questions.
https://www.cancer.org/cancer/diagnosis-staging/tests/biopsy-and-cytology-tests/understanding-your-pathology-report/breast-pathology.html
Waiting is the worst! Keeping your wife and you in my prayers!

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@triciaot

Five days after my biopsy I received a call and found out I had cancer. (The imaging before the biopsy was undecided whether the lesion was cancerous or not.) Eleven days after the biopsy I was able to get a copy of the pathologist report that fully detailed what I had. It did not mean the answer was more involved, it just took that long. I believe that part of the delay was because they needed all doctors involved to read the report and sign off on it before they released it to me.

I found this version of Understanding Your Pathology report to be very helpful. I took each little phrase from my pathology and looked it up on this report. I know some people would prefer to wait to let the doctor explain it to them, and that’s a good option, too. But, for me, I felt better having a little knowledge about the new terms they were sharing so I could ask questions.
https://www.cancer.org/cancer/diagnosis-staging/tests/biopsy-and-cytology-tests/understanding-your-pathology-report/breast-pathology.html
Waiting is the worst! Keeping your wife and you in my prayers!

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Just want to add that my biopsy pathology was different from my post-surgery pathology in some important ways. My tumor was heterogeneous and the biopsy only took a small part of it and said I was HER2+ but I wasn't! It also emphasized ductal but I had mixed ductal and lobular.

I had an Oncotype test on biopsy specimen and had it retested due to the differences with post-surgery specimens and Oncotype was exactly the same so that was reassuring.

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I am 5+ years out from mastectomy/chemo/radiation . . . the waiting early on was very difficult, but necessary. Hopefully you will hear sooner than later, but keep in mind that they want to KNOW exactly what is what so that the very most appropriate plan of action/treatment can be developed and begin. My initial suspected issue was found in March . . . additional mammograms and biopsy locally of mass was about a month later . . . results were delayed and took about 8 days . . . as soon as malignancy was evident I contacted the cancer center and had an initial appointment in about 2 weeks . . . from there on things progressed at the rate determined by the cancer center. My mastectomy was in May . . . chemo began in August . . . . Radiation began in December and ended in early February.

There was a lag is starting chemo because a small mass on my kidney needed to be looked at. When the delay reached the 5 day mark, I called the chemo nurse and asked why this was taking so long (the urology dept was dragging their feet to give me an appt) and that day I was asked to come in the next day (irritated Urologist) so that chemo was only delayed by 10 days! In hindsight, THAT was the only issue where I woulda/shoulda/coulda called to light the fire. In hindsight as soon as was told that chemo would begin AFTER the Urologist had evaluated the mass, I should have insisted that either that visit would happen in less than 48 hours OR chemo was going to begin sooner not later. Urologist, who was a total jerk and annoyed that he had to see me at the 10 day delay mark, remained a total jerk for the next 4 years. The mass continues to need active surveillance. I switched to a different facility/Urologist for Active Surveillance of that mass.

So, sometimes, the delays are to be expected and acceptable and sometimes they are not. ASK the doctors who are initially referring for SOME TEST, SOME SCAN, SOME SOMETHING ELSE to be done what the appropriate/typical time lag is to get an appointment and get the something done, what should you do if you are offered an appointment that is way far out of that timing, and what to do if you call to schedule and do not get a call back in 24 hours (or whatever window is stated). In my instance, the Chemo doctor called the Urologist and said SEE HER NOW I suspect. But only after I called and said that I was at the X DAY timing and no appointment yet - I think they got me in on the next day which was 10 day delay of starting chemo. (14 days is the outer limit, I was told).

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@frank1956

Well, the biopsy was done on Tuesday. It is now Friday night, still no calls. My wife called the Women's Diagnostic Center and her gynecologist. No one has any information where the pathologist's progress is.
I read in the book that they have to do more tests with the tissues for higher stage, that is maybe why it is taking longer? Wife will call them on Monday morning again.

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My biopsy was available exactly one week after my biopsy.

I think that's just how long it takes.

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We received the pathology report on Tuesday (10/8), 7 days after the biopsy. It shows cancer. My wife is a quiet person. and she is very calm about this, but I know she is hurting inside. She does not post anything in any social networking forums, so I am doing this to help with information gathering.
The pathology report shows:
INVASIVE DUCTAL CARCINOMA
Grade 2. BRS Score: 7/9
Size of invasive tumor: at least 0.7 cm.
Estrogen Receptor: positive
Progesterone Receptor: positive
Her2/new IHC: Negative
Ki67 proliferation rate: 30-35% (high)
AJCC pathologic T-stage: at least pT1b.
Lymphovascular invasion: Not identified
DCIS: Not identified
My wife's gynecologist suggested to start with a breast surgeon, so she has been looking for one in UCLA Santa Monica facility, their main campus for breast cancer.
It took us a day to gather the medical records from the past 2 years with CDs. We drove to Santa Monica and hand delivered those to their front desk. We have to call their scheduler today to get an appointment with one of their breast surgeons. We hope to see a doctor soon.

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@frank1956

We received the pathology report on Tuesday (10/8), 7 days after the biopsy. It shows cancer. My wife is a quiet person. and she is very calm about this, but I know she is hurting inside. She does not post anything in any social networking forums, so I am doing this to help with information gathering.
The pathology report shows:
INVASIVE DUCTAL CARCINOMA
Grade 2. BRS Score: 7/9
Size of invasive tumor: at least 0.7 cm.
Estrogen Receptor: positive
Progesterone Receptor: positive
Her2/new IHC: Negative
Ki67 proliferation rate: 30-35% (high)
AJCC pathologic T-stage: at least pT1b.
Lymphovascular invasion: Not identified
DCIS: Not identified
My wife's gynecologist suggested to start with a breast surgeon, so she has been looking for one in UCLA Santa Monica facility, their main campus for breast cancer.
It took us a day to gather the medical records from the past 2 years with CDs. We drove to Santa Monica and hand delivered those to their front desk. We have to call their scheduler today to get an appointment with one of their breast surgeons. We hope to see a doctor soon.

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@frank1956 from online:
"pT1b: Tumor >0.5 cm but ≤1.0 cm in greatest dimension "

It is important to know the percentage or scores for estrogen and progesterone. Higher percentages are good and anti-estrogen meds will of course work well if ER score is high.

Ductal or lobular, LCIS? No DCIS I see. Good there is no lymphovascular invasion.

Can you see the breakdown of the grade assignation? ki67% is a measure of proliferation so wondering how that higher score goes with grade 2.

I had a 20% ki67 (I speculated this was possibly due to cells growing after biopsy), grade 3, lymphovascular invasion (focal) and had a positive HER2, then equivocal, then negative and had it retested.

I had a double mastectomy, no radiation as a result. The Oncotype Dx test, which your wife will have, often guides treatment. Surprisingly, mine was low with a score of 8 which meant no benefit from chemo. I did hormonal meds for 5 years (letrozole).

ki67% is included in the Oncotype along with other measures of proliferation. As you can see, grade does not predict treatment anymore!

Once your wife has a plan it will just be one foot in front of the other and she will get it done. I am ten years out and doing fine despite my seemingly awful pathology.

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@windyshores

@frank1956 from online:
"pT1b: Tumor >0.5 cm but ≤1.0 cm in greatest dimension "

It is important to know the percentage or scores for estrogen and progesterone. Higher percentages are good and anti-estrogen meds will of course work well if ER score is high.

Ductal or lobular, LCIS? No DCIS I see. Good there is no lymphovascular invasion.

Can you see the breakdown of the grade assignation? ki67% is a measure of proliferation so wondering how that higher score goes with grade 2.

I had a 20% ki67 (I speculated this was possibly due to cells growing after biopsy), grade 3, lymphovascular invasion (focal) and had a positive HER2, then equivocal, then negative and had it retested.

I had a double mastectomy, no radiation as a result. The Oncotype Dx test, which your wife will have, often guides treatment. Surprisingly, mine was low with a score of 8 which meant no benefit from chemo. I did hormonal meds for 5 years (letrozole).

ki67% is included in the Oncotype along with other measures of proliferation. As you can see, grade does not predict treatment anymore!

Once your wife has a plan it will just be one foot in front of the other and she will get it done. I am ten years out and doing fine despite my seemingly awful pathology.

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Thanks. You certainly gave us a hope that this is beatable. There is no break down of Ki67 score, just that it is 30-35% (high) which is concerning.
It is ironic, on the same day when my wife received her diagnosis, I saw my own Urologic Oncologist who declared that after 2 benign prostate biopsies, 6 months part, I do not have evidence of cancer. I wish to switch places with my wife. I rather have cancer myself to set her free from it.
We have told our daughter to get mammogram early, and our son to get PSA test early.

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@frank1956
I am glad you are being proactive and there to support your wife. The pathology is first step of many. It is helpful to see biopsy results so you can prepare for appointment and start to recognise some of the terms associated with breast cancer. But, I advise you to leave the interpretation to the experts. Every person is an individual and treatment plans will vary based on your wife's situation.

You might want to look at this discussion about what questions to ask, even though it is DCIS instead of IDC, some of questions will be similar: :
https://connect.mayoclinic.org/discussion/just-got-diagnosed-with-dcis/
Also, see the additional discussion dealing with invasive ductal cancer:
- Invasive ductal carcinoma (IDC): Anyone else?
https://connect.mayoclinic.org/discussion/invasive-duct-ca/
To search on all IDC- related discussions: https://connect.mayoclinic.org/search/discussions/?search=invasive+ductal+carcinoma

There is so much information on Breast Cancer on internet, it can become overwhelming.
Mayo Clinic You Tube channel has some videos that might be helpful but the link below only works if you copy it and paste it in the URL page address in your web browser:
https://www.youtube.com/MayoClinic/search?query=breast%20cancer
Search on Breast Cancer

Hope your able to get an appointment soon.

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@frank1956

We received the pathology report on Tuesday (10/8), 7 days after the biopsy. It shows cancer. My wife is a quiet person. and she is very calm about this, but I know she is hurting inside. She does not post anything in any social networking forums, so I am doing this to help with information gathering.
The pathology report shows:
INVASIVE DUCTAL CARCINOMA
Grade 2. BRS Score: 7/9
Size of invasive tumor: at least 0.7 cm.
Estrogen Receptor: positive
Progesterone Receptor: positive
Her2/new IHC: Negative
Ki67 proliferation rate: 30-35% (high)
AJCC pathologic T-stage: at least pT1b.
Lymphovascular invasion: Not identified
DCIS: Not identified
My wife's gynecologist suggested to start with a breast surgeon, so she has been looking for one in UCLA Santa Monica facility, their main campus for breast cancer.
It took us a day to gather the medical records from the past 2 years with CDs. We drove to Santa Monica and hand delivered those to their front desk. We have to call their scheduler today to get an appointment with one of their breast surgeons. We hope to see a doctor soon.

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It is definitely better to have as much information as you can get. This is a good place for information and support.
Although, as members we cannot give medical advice, or explain a plan of any kind, we can translate what terms mean and what tests are and relate what that meant for us.
Having this biopsy in hand means that she can see an oncologist and they can start formulating an individual plan for your wife based on these test results.
There will most likely be choices she will have to make based on her feelings about this. My best advice to you, is to support whatever decisions she makes. If she makes informed decisions, she will have thought it through.
Bless you for supporting her through this journey, my husband and I have been through a lot of cancer, and our marriage stronger than ever.
Can you get the gynecologist to send a referral to the university breast clinic to expedite this?
Each day after the shock of learning will have its own challenges for a while, how are you both doing today?

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