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Anyone go to a Mayo Clinic for neuropathy?

Neuropathy | Last Active: Oct 14 7:30pm | Replies (75)

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@rwinney

Yes, I had all appropriate testing for nerve related issues and saw multiple specialists in my local area at a large teaching Hospital. No, Mayo did not provide a reason for denial, but did recommend that I continue to work with my local medical care team. That led me to believe there was nothing much more they felt they could offer.

In addition, Mayo Clinic gets inundated with people wanting to be seen. Sometimes they don't have openings and may need to prioritize folks with more urgent matters. It's difficult to assess whether if you're denied once you'd be denied twice or three times. There have been instances of persistence paying off when applicable.

Where are you in your journey? Have you been diagnosed with neuropathy already? Do you feel there's more testing to be done?

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Replies to "Yes, I had all appropriate testing for nerve related issues and saw multiple specialists in my..."

@rwinney Hi Rachel - Like you, I had lots of testing done for 3 years at 3 teaching hospitals and had all of the written reports. Idiopathic, all three. I decided to apply at Mayo Rochester. I sent all reports to Mayo with a letter implying that perhaps I could be a challenge for their doctors. I tried to give them a solid reason to accept me. Was accepted in Nov 2019, went to Mayo Feb 2020 prior to pandemic and I am sure back then the staffing was greater prior to the pandemic. Mayo said idiopathic as well however, they did some tests that the other hospitals did not do. If turned down, I would apply again after 9 - 12 months and provide any changes in condition from the prior application. Nothing to lose and don't get discouraged.