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DiscussionWhat was your experience with bone marrow biopsy?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (146)Comment receiving replies
Replies to "@kayabbott I’m sorry to hear that. Will they start you on a treatment regimen or are..."
If it is SMM then likely waiting to see if it morphs to MM. I don't have the DNA results yet. If I have AL amyloidosis then it will be treated like MM. I had the fat pad biopsy yesterday, which is sort of like liposuction for people that only want a small glob removed (looked like whiter chicken fat). My oncology dr doesn't think I have kappa AL amyloidosis, but my GI doc does (I suspect my GI is right). I read some good books, "A lucky life interrupted" by Tom Brokaw on his MM diagnosis in 2013 and how he deals with it, and "Breath from salt" by Trivedi on the history and treatment of cystic fibrosis (including where Congo Red and other marker dyes came from). Having to remake oneself is better than being unmade.